Blood Cancers & Disorders Support Group

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Comments (1,895)

Hi: I wouldn’t think you’d need a second one but you need a copy of it...

https://connect.mayoclinic.org/comment/1062263/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 4, 2024

Hello Rick, thank you for your service. I’m sorry that you are now dealing with so...

https://connect.mayoclinic.org/comment/912825/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hello Karen: My maiden name was Keeler- not very common. I live in TX but my...

https://connect.mayoclinic.org/comment/904753/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2023

This is for both you @jeannie215 and @kayabbott . My story is long too and has...

https://connect.mayoclinic.org/comment/1009914/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

My MGUS was also found by going to a rheumatologist after a year of suffering with...

https://connect.mayoclinic.org/comment/825884/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

That is why I pushed so hard for a biopsy now, they only wanted to watch...

https://connect.mayoclinic.org/comment/1249888/

Discussion: I may have low grade lymphoma or it could be from inflammation

Support Group: Blood Cancers & Disorders

Posted: Mar 3 9:43pm

@spmreads1 Welcome to Mayo Clinic Connect. Cyroglobulenmia was new to me so I had to check...

https://connect.mayoclinic.org/comment/1100917/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

I have just been diagnosed with MGUS, but told not important at this point, come back...

https://connect.mayoclinic.org/comment/807720/

Discussion: MGUS + pulmonary sarcoidosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

@canadabob , GREAT!!! My primary has said he can handle me too....yet he never found the...

https://connect.mayoclinic.org/comment/970788/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2023

I have tried for a second opinion at the Mayo in Jacksonville, but I was informed...

https://connect.mayoclinic.org/comment/884835/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 25, 2023

I have a burning in my right foot. My doctor tested me and said I had...

https://connect.mayoclinic.org/comment/851928/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Itching (puritis) is the symptom that led me to oncology. It was zyrtec that relieved the...

https://connect.mayoclinic.org/comment/790329/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

My lumbar MRIs just showed normal wear and tear. My Hematologist/Oncologist isn't concerned about it nor...

https://connect.mayoclinic.org/comment/1210948/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 10:25pm

@projfan I do have pain which may be attributable to MGUS but when one has coexisting...

https://connect.mayoclinic.org/comment/1258449/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:42am

Yes, I was told the same thing nothing can be done about it. I'm what they...

https://connect.mayoclinic.org/comment/1158000/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2024

@j2c , @kayabbott , @like2dance2 , others 😂 I'm also dealing with MGUS and neuropathy. I...

https://connect.mayoclinic.org/comment/991043/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

The mind-body connection is so important. Anxiety can really throw your whole body chemistry for a...

https://connect.mayoclinic.org/comment/869269/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Welcome to the MGUS club. It does seem a bit maddening to rely on the wait...

https://connect.mayoclinic.org/comment/793954/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

I was diagnosed 6 years ago but wonder if the Oncologist diagnosed correctly?? because I have...

https://connect.mayoclinic.org/comment/74591/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2019

Since the MGUS labs and the rheumatology labs are both twice a year, it would be...

https://connect.mayoclinic.org/comment/1132883/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2024