Blood Cancers & Disorders Support Group | Page 18

Yes, I've perused many of the posts. It's truly inspirational to read success stories related to...

https://connect.mayoclinic.org/comment/1092115/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Hi @mrsspiker. Let me officially welcome you to Connect, though you’ve been a member for a...

https://connect.mayoclinic.org/comment/1091801/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

@swalex Just browsing your Web site: There is research underway to see if anti-inflammatory diet might...

https://connect.mayoclinic.org/comment/1525864/

Discussion: Newly Diagnosed Essential Thrombocytosis

Support Group: Blood Cancers & Disorders

Posted: Mar 13 9:32am

Meg- I have also been told that really high platelets can cause bleeding. Fortunately HU for...

https://connect.mayoclinic.org/comment/1460586/

Discussion: Essential Thrombocytosis (ET): What are options with aspirin allergy?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2025

There is research looking at the connection between MPNs and inflammatory diseases like RA, gout, etc....

https://connect.mayoclinic.org/comment/1002821/

Discussion: A link between Rheumatoid Arthritis and Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

I’m in the same situation as you are - I have skin GVHD on my stomach....

https://connect.mayoclinic.org/comment/926128/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 8, 2023

Thank you Lori— As much as it pains me I have read that gardening will be...

https://connect.mayoclinic.org/comment/1066077/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 11, 2024

During a 5th spine surgery at age 79, I was diagnosed with Jak2 mutation. My platelet...

https://connect.mayoclinic.org/comment/801488/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

I was diagnosed in 2001 with PV/ jak2 mutated with blood withdrawals until 2012 Myelofibrosis diagnosed...

https://connect.mayoclinic.org/comment/794654/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

I was diagnosed with CMML 9 years ago, and after a BMB they added myelofibrosis to...

https://connect.mayoclinic.org/comment/1435240/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2025

Good morning, @tim376. You were very recently diagnosed with myelofibrosis, (MF) so I’m sure you have...

https://connect.mayoclinic.org/comment/1502334/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 10 9:17am

@jerrlin Diagnosed with PV 10 years ago. I am now 75 yrs old. Its been a...

https://connect.mayoclinic.org/comment/1521164/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Mar 6 3:51pm

68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms...

https://connect.mayoclinic.org/comment/132637/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2020

Hi @papa6275 - my diagnosis was JAK2 PV in May ‘22. Like you I did not...

https://connect.mayoclinic.org/comment/913795/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is...

https://connect.mayoclinic.org/comment/1091634/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

derikburger @derikburg My PV caused Myelofibrosis, I was diagnosed Dec. 30, 2022 . Jakafi, Hydroxyurea ,...

https://connect.mayoclinic.org/comment/817148/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2023

Hi! Oh gosh, I know you have a tough decision ahead of you. It’s easy to...

https://connect.mayoclinic.org/comment/1039123/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 23, 2024

Penny...what was the determination? EV..PV? I too was diagnosed 3 years ago. BMB confirmed PV with...

https://connect.mayoclinic.org/comment/329374/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2021

I have had CMML/Myeloproliferative disease for ten years and have tried everything for itching. I currently...

https://connect.mayoclinic.org/comment/1246622/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Hi @loribmt Lori, Thank you for this insight. Very reasonable suggestion to not make a judgment...

https://connect.mayoclinic.org/comment/967194/

Discussion: Chimerism Test Results Post Stem Cell Transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 18, 2023