Blood Cancers & Disorders Support Group

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Comments (2,130)

Thank you for your post. I am a firm believer in Red Light Therapy because it...

https://connect.mayoclinic.org/comment/1383183/

Discussion: Has anybody heard of using Red Light Therapy in CLL?

Support Group: Blood Cancers & Disorders

Posted: Aug 31 7:04am

Considering where you had your blood drawn, not knowing your age, I don’t want to scare...

https://connect.mayoclinic.org/comment/715743/

Discussion: Elevated C4, elevated immunoglobulin, and positive ANA?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2022

I joined the forum last year due to long covid, and received a lot of useful...

https://connect.mayoclinic.org/comment/1030318/

Discussion: question for oldtimers

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

My husband had low white counts since 2017 and we had no idea about MGUS and...

https://connect.mayoclinic.org/comment/962551/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

I have had it about the same time. MY GP tells me no worries as the...

https://connect.mayoclinic.org/comment/1353358/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 21 1:40pm

I've had 2 or 3 bone marrow biopsies since learning I had MGUS 11 years ago....

https://connect.mayoclinic.org/comment/793399/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023

Hi there Shawnnyce, I’m sorry to hear firstly that the doc didn’t inform you of the...

https://connect.mayoclinic.org/comment/888521/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

I find your post interesting because back in 2019 when I first discovered something was wrong...

https://connect.mayoclinic.org/comment/738066/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2022

I like to try to help others, especially if their doctor has given them next to...

https://connect.mayoclinic.org/comment/752184/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2022

dodgegirl2 First time for me to post on here. Like many of you, we have multiple...

https://connect.mayoclinic.org/comment/1102565/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Thank you so much for your response. To your question #1. Yes, I have symptoms and...

https://connect.mayoclinic.org/comment/950919/

Discussion: Don't know what to think and feeling uncertain at this point

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2023

Thank you, Susan. I too have a list (not as much as a grocery list). At...

https://connect.mayoclinic.org/comment/999349/

Discussion: MGUS I need help understanding my lab report.

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2024

Oh my goodness - heat intolerance - that one has been a biggie for me too!...

https://connect.mayoclinic.org/comment/827349/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Hello @thipley, welcome to the forum. I had to look up CCUS. Can’t address risk except...

https://connect.mayoclinic.org/comment/980404/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

Can I please interject? Back in 2013 I had a 10 day bout with C difficile...

https://connect.mayoclinic.org/comment/1012076/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

Hello again. I have my first consultation with a hematologist coming up on Wed and I'm...

https://connect.mayoclinic.org/comment/1001283/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2024

Thank you for answering! I’m brand new to this website, so I’m just learning to use...

https://connect.mayoclinic.org/comment/899840/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2023

Hi @kbluegrass, you are taking the bull by the horns here. I think we all could...

https://connect.mayoclinic.org/comment/983905/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2023

This is my first post, and see that I can identify with a number of you...

https://connect.mayoclinic.org/comment/109656/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2016

Hi Nick, Reading your post and your age brings tears to my eyes. I know it's...

https://connect.mayoclinic.org/comment/937749/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2023