Blood Cancers & Disorders Support Group

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Comments (2,131)

Hello, @colleenyoung invited me to the party. My husband was diagnosed in 2010 with multiple myeloma....

https://connect.mayoclinic.org/comment/707400/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2022

Hi - 49 year old male here in chronic pain for 7 months now, just recently...

https://connect.mayoclinic.org/comment/264607/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2020

Hi there nancy1900, thank you very much for your kind reply and wonderful suggestions. I want...

https://connect.mayoclinic.org/comment/883653/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

@lfevold Hello, Linda. Allow me to introduce myself. Colleen invited me into your conversation because I...

https://connect.mayoclinic.org/comment/325697/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2020

Hi Amanda, thank you for following up with me. I have almost lost hope of figuring...

https://connect.mayoclinic.org/comment/665399/

Discussion: MGUS associated with Type I Cryoglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2021

I am so sorry for all your problems. But don't be devasated. It is a very...

https://connect.mayoclinic.org/comment/74585/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

Thank you for your encouragement, Ginger! It is wonderful to know you are a survivor of...

https://connect.mayoclinic.org/comment/1061735/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 3, 2024

Hi sliddy47, I’m really sorry to hear that😔 I hope you can find a smart, empathetic...

https://connect.mayoclinic.org/comment/888268/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Hi Rick, welcome to the forum. You feelings as a newly diagnosed MGUS Pt are certainly...

https://connect.mayoclinic.org/comment/958177/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

I was a medical social worker for the last 15 years of my career, and I...

https://connect.mayoclinic.org/comment/873167/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Leslie, yes… I always said that my premature death would be financially more beneficial to my...

https://connect.mayoclinic.org/comment/860776/

Discussion: Anyone been denied life insurance based on your MGUS dx?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Hello, I am 53, male. Occupation is a Chef. After 1 year of MGUS I was...

https://connect.mayoclinic.org/comment/838969/

Discussion: Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait

Support Group: Blood Cancers & Disorders

Posted: Apr 6, 2023

I'm 38 years old, and after having been misdiagnosed for 15 years, lost 85% of feeling...

https://connect.mayoclinic.org/comment/1260964/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 8:56am

@4kleo I don't recall if I have welcomed you to Mayo Clinic Connect. If not, here...

https://connect.mayoclinic.org/comment/1190958/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

@kayabbott Good morning. I am also 71 and diagnosed with IGM MGUS in 2021. My BMB...

https://connect.mayoclinic.org/comment/1365445/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 7 7:01am

@tatajess , I've been diagnosed with mgus over 5 yrs ago, I'd have to check my...

https://connect.mayoclinic.org/comment/970750/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2023

I’m smoldering. Going to a neurologist in Feb (that’s how long our wait times are) but...

https://connect.mayoclinic.org/comment/1397140/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 20 9:01am

@suznsl I’m 73, but until I was 70 I continued to work and had a group...

https://connect.mayoclinic.org/comment/1353190/

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 21 10:37am

They caught mine on a yearly physical but it had progressed to smoldering myeloma. About a...

https://connect.mayoclinic.org/comment/1303526/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: May 13 5:06pm

Hello from PA. I have a history that may give you some help with perspective of...

https://connect.mayoclinic.org/comment/81218/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2020