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Zometa infusions to help prevent bone loss from cancer treatments
Has anyone had Zometa infusions to help combat the effects of aromatase inhibitors (bone loss). I have osteoporosis of my spine and osteopenia of the hip and am told I need this to prevent future fractures.
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I agree with @sally484, avoid it if you can. I only had 2 infusions and already have broken teeth and jaw pain. I’m only 53!
I just had my last Zometa infusion after several years. Steady decline in bone density. Oncologist has referred me to Primary Care Doctor for osteoporosis treatment. Mastectomy 6/17, stage 1 grade 2. Anastrazole for 7 years. Severe morning joint pain hip/lower back. Neuropathy in toes. Now swollen lymph nodes in neck. 76 years old.
@itc1234 , welcome. Are you on Zometa infusions? How are you?
@marymargaretsh If I had to do it again (I pray I don't) I would NOT do it!!
@sally484
Thank you so much! I'll try to avoid it if at all possible.
@marymargaretsh I was 65 when I started it and had just retired. I was on it for about 4 or 5 years. I am 71 now so I probably stopped it 1 or 2 years ago.
Would you mind telling me how many years you were on it, what age you started it, and when you ended it? Thank you so much. I'm 70 and just not sure it's worth it.
I had zometa infusions for quite some time and now my teeth are crazy! My jaw cracks and hurts and I believe it is necrosis. I now longer take the infusions, but the damage is done. If you can avoid it, then I would!!
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@colleenyoung -I have mestastsis in the lymph nodes from a breast cancer I had 25 years ago. Age 72 - I refused Chemo due to my age - my oncologist put me on Anastrozole AI - in about 6 months the cancer size decreased - they did surgery (underarm) removed 24 nodes 11 were cancerous. Then I got 16 rounds of radiation. Went on Verzenio but unable to tolerate after a month. Still on Anastrozole - I am pushing oncologist to look at my immunity - NCL under 1000. The oncologist suggested Zometa infusions every 6 months to help prevent bone metastasis. Believe my oncologist are pretty sure my cancer well return. Had my first Zometa infusion last August - in FEB will take the 2nd. Asking for another MRI, blood test and bone density test also which will provide more info. Previously had the very start of osteopenia due my age - we will see if any movement on my bone density numbers.