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John, Volunteer Mentor
@johnbishop

Posts: 2970
Joined: Mar 22, 2016

You are NOT helping!

Posted by @johnbishop, Aug 10, 2017

There are times in life that people will say something that really irks you and without thinking it out you respond by saying something that is hurtful …well, that’s not a good idea. We want Connect to be a SAFE place, a WELCOMING place, and a LEARNING from each other place. A place where people from all walks of life can meet and share common health concerns. By sharing, we can help each other.

Here’s the deal – it does not help anyone to banter back and forth with another Connect member that you feel has said something out of bounds. It only brings others into the tiff and makes everyone feel bad. We know you may mean well and want to help BUT if someone says something way out of line, send the Groups Moderator a private message or send the person you are having a difference of opinion with a private message. The point being – keep an argument out of the discussions – it will not help anyone and only increases the hurt on both sides.

To send a Connect member a private message, click on the @connectname and then click the Send Private Message link under their name. Please be respectful!

P.S. – Sometimes if everyone ignores a comment that bothers them, it will go away on it’s own. I’m a firm believer in the Toastmasters meeting moto – “keep sex, religion and politics out of the discussion”.

Thanks to each of you for helping keep Connect a safe place to share, learn, and get answers.

Hoping for a pain free day for each of you…and an answer that helps you with your health concerns.

John

PS: For more info, please see:

REPLY

You are 100% correct John we are here for support for our medical issues not here to disagree with one an other.
Now my latest on my PMR seeing we are still in our monsoon I am still on 10mg of prednisone in the AM & 5ng in the PM. I was at my Dr. this week & he said that with PMR the patient is the best to know on how to adjust his or her dose on pred. How one feel & is progressing on the ailment. Myself I am able to put up with a little discomfort instead of increasing the dose as we all know being on that stuff one can develop other problems so keep it as low as you can.

@rolandhp

You are 100% correct John we are here for support for our medical issues not here to disagree with one an other.
Now my latest on my PMR seeing we are still in our monsoon I am still on 10mg of prednisone in the AM & 5ng in the PM. I was at my Dr. this week & he said that with PMR the patient is the best to know on how to adjust his or her dose on pred. How one feel & is progressing on the ailment. Myself I am able to put up with a little discomfort instead of increasing the dose as we all know being on that stuff one can develop other problems so keep it as low as you can.

Jump to this post

Thanks Roland. I had noticed a few back and forth comments between Connect members and I know they both mean well but it detracts from the purpose of Connect. I was hoping they might see this and be a little more respectful with each other.

Glad you are still doing OK with your PMR. I feel the same way about the dosage of prednisone – only the patient knows how best to adjust the dosage based on how bad the pain is from the PMR. I’ve been at 6 mg for about 3 weeks and in the next week I’m going to try to go to 5-1/2 mg to see if I feel the same. Right now my pain level is fairly low and tolerable, just stiff in the morning which is why I do 30 minutes on the exercise bike when I first get up to get the legs moving. I’ve never tried splitting the dosage between morning and evening. That may be something for me to try for a week to see if I can take 4 mg in the morning and 1 mg in the evening. I’ve gained a few pounds but that just means I need to focus a little harder on drinking more water before a meal and eat less.

John

@rolandhp

You are 100% correct John we are here for support for our medical issues not here to disagree with one an other.
Now my latest on my PMR seeing we are still in our monsoon I am still on 10mg of prednisone in the AM & 5ng in the PM. I was at my Dr. this week & he said that with PMR the patient is the best to know on how to adjust his or her dose on pred. How one feel & is progressing on the ailment. Myself I am able to put up with a little discomfort instead of increasing the dose as we all know being on that stuff one can develop other problems so keep it as low as you can.

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I guess I am fortunate what I mean is that I do not have any discomfort in my lower body just shoulders & wrist. Now I am also a cyclist & with the wrist pain it makes it a little difficult to ride the road vibration doesn’t help matters at all. I do ride a racing bike & I do run 100 lbs in my tires which also doesn’t help. I did 40 miles last Sunday & I really hurt in the evening, so the rest of this week I have kept it down to 20 miles/ride. We have to keep going & not feel sorry for ourselves. Now you said that you have been taking 6 mg of pred. my question is how many different doses of pred. are there? I have been cutting mine to get my 5mg.

@rolandhp

You are 100% correct John we are here for support for our medical issues not here to disagree with one an other.
Now my latest on my PMR seeing we are still in our monsoon I am still on 10mg of prednisone in the AM & 5ng in the PM. I was at my Dr. this week & he said that with PMR the patient is the best to know on how to adjust his or her dose on pred. How one feel & is progressing on the ailment. Myself I am able to put up with a little discomfort instead of increasing the dose as we all know being on that stuff one can develop other problems so keep it as low as you can.

Jump to this post

Wow! I admire you for being able to ride that distance. In my younger days when we lived in Cerritos, CA, I would ride my 10 speed to Huntington Beach with my friends and take a dip in the ocean. Was only about 15 to 20 miles away but I always had my wife pick me and the bike up and take me home.

I know prednisone is available in 1, 2.5, 5, 10, and 20 mg pills. I think the cost is higher for some of them for whatever reason, not sure. Right now I’m using the 2.5 and 1 mg pills. The 1 mg pills aren’t too easy to split but I get lots of practice. I think your pharmacist may be able to help you.

@rolandhp

You are 100% correct John we are here for support for our medical issues not here to disagree with one an other.
Now my latest on my PMR seeing we are still in our monsoon I am still on 10mg of prednisone in the AM & 5ng in the PM. I was at my Dr. this week & he said that with PMR the patient is the best to know on how to adjust his or her dose on pred. How one feel & is progressing on the ailment. Myself I am able to put up with a little discomfort instead of increasing the dose as we all know being on that stuff one can develop other problems so keep it as low as you can.

Jump to this post

John thanks for the info on the pred. dosages. Well before moving to the mts. in AZ we lived in Corona & my rides were 100 plus every Sunday from May to Oct. & at least once a month it was a ride to San Diego. Now at my age I am just glad I can still ride, it is difficult living in the mountains it is either up or down the hills.

Well said! Thank you John!

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