I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland. I experienced pain on the left side of my face in the jaw area. My jaw felt like it was locking up, it was difficult to open my mouth to eat, yawn or speak. I also found a small lump right below my ear lobe. My mouth hurt on the left side. I first thought it was a root canal that went bad. So my first step was to go to the dentist. I went there and they found an abscess on my upper part of my gum above my tooth 14. They removed it and said come back in a year. 2 weeks later the pain got even worse in my jaw area, so I went to my medical doctor. His first thought was parotid gland infection, so he put me on strong antibiotics for the weekend, and of course they didn't make any difference. So I went back on Tuesday and he ordered a CT scan of the area. It came back with a tumor on the parotid gland. He sent me to an ENT, they ordered a biopsy of the tumor. It was the "rare" cancer High grade Neuroendocrine Carcinoma. They referred me right away to Mayo Clinic in Rochester MN, within a month I had surgery to remove the tumor. The tumor was 2.5 centimeters. The facial nerve was sacrificed, so I suffer facial paralyzes, similar to that of someone who has has had a stroke. Fortunately, there was no spread of the cancer, the lymph nodes were clear. I endured 36 radiation (proton) treatments, and 4 rounds of chemo. The pain from the treatment and nerve damage has been severe. I continued to go back every 3 months for MRI's.

Sept.2020 I had pain in my upper spine. I never have back pain. I am a huge gardener, so I went for massage, chiropractic care and then my primary care physician. She did an xray and did see a cloudy area in my spine. With my history of cancer she ordered a CT scan, that is when they found the 2 spots on my liver and on my spine – V9. This is 3 years after my first diagnosis. She had me do a PET Scan to confirm and it showed up there as well. I was once again referred to Mayo. With an MRI they also confirmed the cancer. Next step was an ablation to the liver for the tumors, and radiation to the spine, focused cancer treatments. The ablation went fine, the radiation was rough. They planned to do 3 treatments, but I had too much pain so they did 2 instead. The oncologist feels with the severe reaction from the 2 treatment the tumor will be gone. So I go back in February for the PET Scan and MRI of my face.

If you have an unexplained pain….go get it checked. It is so important to detect the cancer early.

Jump to this post

Stay on here, we’ll support you. THe procedure isn’t much different than the mapping These guys are so good at what they do and have had so much training not much should go wrong. As i said in the prior post its pretty successful. Research I’ve done states in studies its 95 percent effective.

Jump to this post

Does anyone here have experience with a second Y90 treatment. Last CT came back and really wasn't what I wanted to hear. Out of three liver tumors one is dead as a result of the first shoot but one is still hanging in there and one that was benign is showing cancerous properties. I'm wondering if the second shoot will cure once and for all. Thanks, Diane

Jump to this post

Diane, I'm sorry to hear that two of the three tumors are showing potential activity. Is a second treatment with Y90 an option for you? Are any other options being considered?

Jump to this post

Yes, thankfully. I’m scheduled for the second treatment on the 25th of this month. That’s why I was wondering if anyone has had the second treatment and it got them once and fo all. That’s what I’m praying for. Thanks for answering Colleen.

Jump to this post

I was diagnosed with stage 4 liver cancer, with 2 large tumors, plus… I was given 1 month and no possibility of a 'fix'. A week later, a doc approached me to suggest radioembolization. The first treatment halved the size of both tumors. A second treatment killed both tumors. This was 4 years and 2 grandchildren ago. It works! Obamacare payed 90%; since my income was small, the hospital paid the last 10%. I am blessed. We are blessed.

Jump to this post

Where did you have this done?

Jump to this post

Where did you have this done?

Jump to this post

Prayers for you Diane! Wish you all the best with your second treatment, Hope all goes well for you! God Bless!

Jump to this post