Y-90 liver cancer treatment

Posted by mudshark @mudshark, Dec 8, 2019

I recently was treated with y-90 on a tumor in my liver. I am interested in knowing of others that have had experiences good, or bad, and of long term results. I have had prior resection of the liver to remove a tumor but a new tumor surfaced in a different section. I am hoping the y-90 will prove to be a more permanent solution. Thanks

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@colleenyoung

This is great news, Diane. I appreciate your returning to update everyone. What is next? How frequently will you have followup appointments?

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Hi Colleen, these postings about Y90 have quit showing up in my email. They used to come in everyday. All the things I was following have quit showing up. What am I doing wrong?

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@digibson

Hi Colleen, these postings about Y90 have quit showing up in my email. They used to come in everyday. All the things I was following have quit showing up. What am I doing wrong?

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There hasn't been a post to this particular discussion for a few days. But if you're not getting any emails, then please check your spam folder. Let me know if you find them there.

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@colleenyoung

There hasn't been a post to this particular discussion for a few days. But if you're not getting any emails, then please check your spam folder. Let me know if you find them there.

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Same here with me. No info in many days let us know what to do thanks

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@yannis

Same here with me. No info in many days let us know what to do thanks

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I don’t get the emails when someone posts to this sight anymore either. Yannis

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I also was treated with y-90 for liver cancer. I'm also interested in hearing from others about their experience with this treatment.

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@yannis

Same here with me. No info in many days let us know what to do thanks

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@yannis and @digibson, did you get an email notification for this reply?
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@dmoceri31

I also was treated with y-90 for liver cancer. I'm also interested in hearing from others about their experience with this treatment.

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Hi @dmoceri31, I'm sure that @yannis and @digibson will share their experiences with Y90 treatment (radioembolization) with you. Please read through the discussion thread if you have already, starting here: https://connect.mayoclinic.org/discussion/y-90-liver-cancer-treatment/

dmoceri31, would you mind also sharing your experience? When did you have Y-90 treatment? How many? How did it go?

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@dmoceri31

I also was treated with y-90 for liver cancer. I'm also interested in hearing from others about their experience with this treatment.

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My husband had Y90 left lobe liver in sept and right lobe in Oct
Going for mri dec 02 also on lonsurf chemo pills
We will see and let you know
I am engaging meeting with top liver cancer surgeon and gastro meeting today want to know why weight loss and muscle mass coupled with heartburn acid reflux symptoms and burping so we will see to determine cause. Labs also regularly
Where are u being treated

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@yannis

My husband had Y90 left lobe liver in sept and right lobe in Oct
Going for mri dec 02 also on lonsurf chemo pills
We will see and let you know
I am engaging meeting with top liver cancer surgeon and gastro meeting today want to know why weight loss and muscle mass coupled with heartburn acid reflux symptoms and burping so we will see to determine cause. Labs also regularly
Where are u being treated

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I also have the burping n hiccups since receiving the y 90 no acid reflex I started taking enzymes with each meal helped tremendously (enzymedica) that's the brand also smaller meals more frequently. Muscle mass goes along with having low protein so I also started taking protein pills 5 with exact amino acids in them. I found a great brand just for that purpose. I will send you the name, I'm not at home. Good luck with your meeting. I have HCC 2 TUMORS in right lobe and tumors that branched off in my portal vein and in branches. They did Mayo clinic Y90 directly in liver and it spread as well into lymph node so high doses
of radiation was done for 5 day's. I finished last week Friday. I'll let you know how it goes. Have a blessed day!
Dorina

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@dmoceri31

I also was treated with y-90 for liver cancer. I'm also interested in hearing from others about their experience with this treatment.

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I couldn’t say enough good about it. Had it done twice and the first shot really slowed the tumors (had 3) down and second shot killed them.. Fo now, I say that because we check every 3 months to make sure nothing more has sprung up and these are still dead, The first treatment was a breeze, back at work in one day the second made me feel like I had a screwdriver in my side for two weeks, Small price to pay if the tumors are gone, Pain would have been easier because they prescribed oxycodone which I was afraid to take most of the tine, Do you have cirrhosis that caused the tumors ti spin off or is something else causing the liver cancer?

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@digibson

Yes, thankfully. I’m scheduled for the second treatment on the 25th of this month. That’s why I was wondering if anyone has had the second treatment and it got them once and fo all. That’s what I’m praying for. Thanks for answering Colleen.

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Diane,
Hoping your second Y90 treatment does the trick and kills the active tumors. I am wondering how long it took to get the results and what the timeline was for the follow up as I have an appointment with IR coming up next week to discuss treatment options for my HCC. Thank you and please let us know how you are doing.

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@parrot53

Diane,
Hoping your second Y90 treatment does the trick and kills the active tumors. I am wondering how long it took to get the results and what the timeline was for the follow up as I have an appointment with IR coming up next week to discuss treatment options for my HCC. Thank you and please let us know how you are doing.

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I it a second treatment or the first treatment after the mapping?

I’ve now had two mappings and three radiation shoots, Was a little disappointing because I had gone almost a year without a tumor popping up then all of a sudden it came out of nowhere.This was a little scary because there was a thrombus attached that was trying to sneak into a branch of the portal vein. Once in the portal vain it can spread to the rest of the liver. Scans have since shown that it did not spread thank God.

Since I’ve been through it two other times I’m pretty secure they will kill this one too, The others I had Y90 on are still there but they’re dead,

I still support y90 and would do it as many times as I can because It’s worked for me but I’m really praying no more tumors will pop up.

I always have a CT scan a month after treatment and they can pretty much tell what it did then every three months to keep an eye on it.

Has anyone else had experiences with varacies? I have had them since I was diagnosed with cirrhosis but they were small grade 1 and too small to be banded. This last EGD I had showed grade 3 and they banded four.

Soooo this was kind of bad news month after doing so well for two years.

Let us know what they are recommending after you meet with IR this week and good luck Parrot.

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