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Lisa
@techi

Posts: 303
Joined: Jun 18, 2017

What's is the real problem

Posted by @techi, Tue, Oct 16 7:15am

I don't really know why l have to keep trying to diagnosing myself. Everytime l go to the hospital l always get a different questionable diagnosis. I was on my discharge papers TIA, the bradycardia, high blood pressure, copd, chf. syncope and we can go on and on but what do we do about it? Then some of those diagnoses change again. Yesterday l went to the doctors office and my pressure was low. I was dizzy, hot flashes and almost was going to pass out. I couldn't even stand up. Then last night l couldn't sleep because l felt like my heart was going to stop. I called the on call nurse and she was asking me questions about my symptoms but how can you give someone a clear answer when it's a guessing game and no direct answer. Then when l was in the hospital just last week l was asked do you have oxygen or a pacemaker but no direct feedback about what's happening. I told the nurse no l have a cpac machine for months not being able to use cpac machine l am told we have to get more info why you need another one. Then you have on a chart ischemic but when you have seizures your told everything is ok. Then one time l had tremors, slurred speech, unable to walk. Then they thought it was a stroke but it told to you everything is ok but you just have stress . Well how about tell me what the problems really are. You are trying to give accurate encounters of what's going on to just hear incompetant medical diagnosing. So l guess l have to be my own health professional or have another scare.

REPLY

I would honestly go to another type of Holistic approach; as I was constantly diagnosed with Psychological issues and didn't receive appropriate Healthcare until being "TOSSED OUT of a hospital!" My best friend knew I had a Stroke and was extremely supportive! She knew I had Seizures and Tonic-Clonic ones, following my lousy former Neurologist treating me like a Psychiatric nutcase! I'm grateful for the care I now receive, because everyone on my Team of Providers treats me like an actual person, whom absolutely had a major Stroke along with a Non-Verbal Learning Disability and Refractory Epilepsy! I finally have healthcare in a system designed for the "Rich and famous!" However, I am obviously Disabled, poor, and must have so many Government Benefits to live! My advice is to have someone help you find a Team of Providers whom will treat you appropriately, with respect and dignity, PERIOD! My book entitled "Misunderstood and Resilient " talks from my perspective not only about coming back from my Stroke on May 4,2001; but also from the perspective of losing an entire team providers at one time! I therefore lost everything, was suicidal, angry, and just so unbelievably lost! That's my reason I am trying to finish my book now and have my story told; as I NEVER want any other Patient to have this happen to them! I didn't deserve having my ENTIRE HEALTH INFORMATION put ONLINE without my WRITTEN PERMISSION! I had specifically told my Therapist the information I had given her was CONFIDENTIAL; but she went over my head and shared the information with the rest of my FORMER, IRRESPONSIBLE, DISCRIMINATORY, PATHETIC Physician's! There weren't any consequences for her, that lousy team, or the hospital; which is also my motivation for having my book Published! I was naive and stupid to TRUST those people and they will FINALLY receive exactly what they DESERVE; which is to be held ACCOUNTABLE for THEIR ACTIONS, PERIOD!!!!! I'm so glad I didn't commit suicide because my mission now is to help others like yourself receive the appropriate care you DESERVE! Please don't give up on finding the right approach to your Healthcare!
My Mother passed away from a Heart Attack 6 and1/2 months prior to my Stroke and I am also writing my book in her memory, in addition to thanking my Father and entire family for supporting me, especially when I was unconscious! My 2 sisters and brother; and my 7 Nieces and Nephews have always been understanding of my abilities as a Stroke Survivor! I have a LIFE worth living now and I want the same for everyone else!

I would honestly go to another type of Holistic approach; as I was constantly diagnosed with Psychological issues and didn't receive appropriate Healthcare until being "TOSSED OUT of a hospital!" My best friend knew I had a Stroke and was extremely supportive! She knew I had Seizures and Tonic-Clonic ones, following my lousy former Neurologist treating me like a Psychiatric nutcase! I'm grateful for the care I now receive, because everyone on my Team of Providers treats me like an actual person, whom absolutely had a major Stroke along with a Non-Verbal Learning Disability and Refractory Epilepsy! I finally have healthcare in a system designed for the "Rich and famous!" However, I am obviously Disabled, poor, and must have so many Government Benefits to live! My advice is to have someone help you find a Team of Providers whom will treat you appropriately, with respect and dignity, PERIOD! My book entitled "Misunderstood and Resilient " talks from my perspective not only about coming back from my Stroke on May 4,2001; but also from the perspective of losing an entire team providers at one time! I therefore lost everything, was suicidal, angry, and just so unbelievably lost! That's my reason I am trying to finish my book now and have my story told; as I NEVER want any other Patient to have this happen to them! I didn't deserve having my ENTIRE HEALTH INFORMATION put ONLINE without my WRITTEN PERMISSION! I had specifically told my Therapist the information I had given her was CONFIDENTIAL; but she went over my head and shared the information with the rest of my FORMER, IRRESPONSIBLE, DISCRIMINATORY, PATHETIC Physician's! There weren't any consequences for her, that lousy team, or the hospital; which is also my motivation for having my book Published! I was naive and stupid to TRUST those people and they will FINALLY receive exactly what they DESERVE; which is to be held ACCOUNTABLE for THEIR ACTIONS, PERIOD!!!!! I'm so glad I didn't commit suicide because my mission now is to help others like yourself receive the appropriate care you DESERVE! Please don't give up on finding the right approach to your Healthcare!

@rachelanne

I would honestly go to another type of Holistic approach; as I was constantly diagnosed with Psychological issues and didn't receive appropriate Healthcare until being "TOSSED OUT of a hospital!" My best friend knew I had a Stroke and was extremely supportive! She knew I had Seizures and Tonic-Clonic ones, following my lousy former Neurologist treating me like a Psychiatric nutcase! I'm grateful for the care I now receive, because everyone on my Team of Providers treats me like an actual person, whom absolutely had a major Stroke along with a Non-Verbal Learning Disability and Refractory Epilepsy! I finally have healthcare in a system designed for the "Rich and famous!" However, I am obviously Disabled, poor, and must have so many Government Benefits to live! My advice is to have someone help you find a Team of Providers whom will treat you appropriately, with respect and dignity, PERIOD! My book entitled "Misunderstood and Resilient " talks from my perspective not only about coming back from my Stroke on May 4,2001; but also from the perspective of losing an entire team providers at one time! I therefore lost everything, was suicidal, angry, and just so unbelievably lost! That's my reason I am trying to finish my book now and have my story told; as I NEVER want any other Patient to have this happen to them! I didn't deserve having my ENTIRE HEALTH INFORMATION put ONLINE without my WRITTEN PERMISSION! I had specifically told my Therapist the information I had given her was CONFIDENTIAL; but she went over my head and shared the information with the rest of my FORMER, IRRESPONSIBLE, DISCRIMINATORY, PATHETIC Physician's! There weren't any consequences for her, that lousy team, or the hospital; which is also my motivation for having my book Published! I was naive and stupid to TRUST those people and they will FINALLY receive exactly what they DESERVE; which is to be held ACCOUNTABLE for THEIR ACTIONS, PERIOD!!!!! I'm so glad I didn't commit suicide because my mission now is to help others like yourself receive the appropriate care you DESERVE! Please don't give up on finding the right approach to your Healthcare!
My Mother passed away from a Heart Attack 6 and1/2 months prior to my Stroke and I am also writing my book in her memory, in addition to thanking my Father and entire family for supporting me, especially when I was unconscious! My 2 sisters and brother; and my 7 Nieces and Nephews have always been understanding of my abilities as a Stroke Survivor! I have a LIFE worth living now and I want the same for everyone else!

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@rachelhorowitz Thank you so much of your words of encouragement. I pray for your situation because you also know how it feels to be around doctors who don't care. I have been dealing with this since 1997 and l have to thank God every day for keeping me alive. I have had a TIA and then when l was told by my first neurologist l had partial seizures now then it went to non-epidemic seizures to finally conversion disorder. Now after all this stuff with going to a psychiatrist for years changing meds. Being in meds that were recalled and not be told. They messed up my liver. So l went to the mayo clinic for a second opinion and Praise God l found out one reason l was having issues with slurred speech, passing out, seizures and tremors. One of the shunts blood is flowing out. It was slowly but now since l am still having issues l have to find out if its bleeding more. I did have memory problems for 19yrs but l had to pray and cry to the Lord to give me my memory back and that he did. Now my doctors are telling me l am confused and l have dementia. Well that a lie. I had a PET and it came back normal. I had problems when l was going to college to get my degree to get a 70 on a test was a miracle after so much tutoring even until the day of the test. I had to have things on audio because I couldn't remember. I told someone as soon as l got out of church after my pastor preached l couldn't even remember one thing he had preached on and l know as well as you know its frustrating but l have to just Thank God because after a 4hr test as t the mayo clinic everything came back normal and when l took a test at the college l got a 90. So don't ever give up, l didn't. But now after all their foolishness l am in the er right now with a low heart rate. And this doctor here is a blessing. She told me your heart rate is low and we are going to send you to the heart hospital so l know God is answering my prayers because l could have died and l was just at the doctor yesterday with a low blood pressure. And when l was in the hospital prior it was bradycardia. I am so glad you are writing your book and l started to do mines. And l am praying l can get up in front new doctor graduates and tell them about the people they treat to have empathy and listen to the patient and to pray and seek before treating and messing people lives. You are a fighter and its people like you who help and make a difference. Thank you so much for your prayers and l will be praying for you also.

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