What NETS show on Gallium scan?
This is year 20 since the diagnosis of my first rectal carcinoid. It was not large enough to cause the carcinoid syndrome, evidently. In 2010 I had a recurrence in the area and had surgery to remove it. Again it was under the usual size where the tumor metastasizes to cause the syndrome. Within the last three years a treatment and research department has opened at one of the major hospitals in Dallas. I have not had an oncologist, ever, because I have never had any symptoms. I have consulted twice with an out-of-state specialist. I sought an appt in 2018 at the new neuroendocrine department at Baylor, hoping to learn what tests or scans could provide surveillance for me. I was rebuffed because I did not have any symptoms. I have an appt Feb 13 with a different doctor there. That doctor also questioned my need for an appointment but finally agreed to see me.
I have had a colonoscopy or flex sig annually for 20 years to watch for recurrence. Does anyone know if the Gallium68 is a good test for identifying rectal carcinoid? The Chromograinen test is not, the specialist told me (10 years ago). I suppose the specialist I see next month will know that, but I am anxious. I do not understand why it has been so difficult to get a doctor to have machines and technology look for evidence of the cancer *before* it grows enough to cause the syndrome.