What is the best treatment of PNET tumor?

Posted by Dr.anwar @anwareid, Aug 13, 2015

What is the best treatment of pent tumor.

Hi @anwareid
According to the American Brain Tumor Association, for PNET (primitive neuroectodermal tumor) “surgery is the standard initial treatment for these tumors. Because of their large size, tendency to spread, and extensive blood supply, total removal is rarely possible.

In children three years and older and in young adults, radiation therapy to the entire brain and spine usually follows surgery. Very young children are usually not treated with chemotherapy until they are older.”

Here’s the link for more info: http://www.abta.org/brain-tumor-information/types-of-tumors/pnet.html

Are you asking on behalf of a child or an adult? Is/was surgery an option?


Hi everyone,
Just wanted to join this group because I am very interested in finding out more about the progress being made through research, etc. my son was diagnosed with a pnet tumor in 2011 and would like to be of help and also know what new is going on in this field.


Welcome @vgriglock.
Glad you joined us. I moved your message to this thread to introduce you to @anwareid who was asking the same question about treatment for primitive neuroectodermal tumors (PNET). You may wish to review Mayo Clinic’s clinical trials database http://www.mayo.edu/research/clinical-trials or the government’s Clinical Trials website to see the latest developments in treatment. https://clinicaltrials.gov/ct2/home

Has you son had surgery? How is he doing?

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