What / how to test for reactive or chronic Ebstein Barr
Hello – I’ve been reading through almost every thread here that relates to EBV and also reading the Medical Medium book. I’ve been dealing with most of what he mentions in the book and diagnosed with many “ailments” – depression, IBS, stress/anxiety, tinnitus, migraines, sinus surgeries, ADHD, UTI’s (that aren’t), unexplained fainting/dizziness to name a few… I had my first positive EBV in 2006 but was told it was a past infection (IGG around 495) but have been dealing with unexplained issues before and after that. Two months ago I started again with debilitating random symptoms that don’t point to any medical “diagnosis” and so far have seen a PCP, Ob-gyn, urologist, and GI…. been on two rounds of antibiodics, have had 2 CT scans and 1 ultrasound and about 8 vials of blood drawn. The only thing that came back was an elevated EBV IGG (around 400) – my dr believes it’s a recent reactivation and accounts for my fatigue but also dismisses it as the cause of the remaining symptoms. However reading the Medical Medium, there are so many symptoms he’s mentioned where I’ve said, OMG I’ve dealt with (or am dealing with) that!!!! I truly believe that EBV is the cause of what ails me and it’s extremely frustrating to not be able to find a health professional who will support it.
So my questions – through all of my reading, I can’t find a definitive approach to testing. I’ve been dealing with random mystery medical issues for 20 years and would like to pursue testing to understand what is the extent of my EBV infection – is it reactivating or is it chronic (how do I know I’m not one of the rare cases)? How pervasive in my system is it? It’s scary to read it can hide in your liver or spleen and not be detected until it’s too late – especially when I’m having pains in those regions but all tests (bloodwork and scans) come back normal. I’ve only had my IGM, IGG and EBNA levels done and the only one ever elevated is IGG. Should I have the DNA testing done? Are there other levels I should have tested and once I’m on my path to recovery, should I have my levels tested again? And how do I know what a normal IGG level is after an initial infection? I know it stays with you for life so is there even a normal? I live in the New York area so there has to be a specialist somewhere! I am definitely going to make the diet / supplement modifications suggested but would really like to understand the extent of damage already done. I am a woman (barely) juggling a career and family fading more and more each day – extremely fatigued, random arthritis like pains, stomach pains and facial flushing are my biggest issues right now (plus other on / off symptoms). Sorry for the long post but I’m in that desperate / confused phase and really don’t want to have another specialist tell me that maybe I should try anxiety meds 🙁 Thank you!!!