What do you think of this Mayo Clinic community site?

Posted by Lee Aase @LeeAase, Jul 5, 2011

We appreciate your feedback on the user experience in this Mayo Clinic site. What do you like? What areas could we improve? What additional resources would you like to see?

@deliasanderson

the mayo blog is great too. would like to see latest research on krabbes, leukodystrophies

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Will see what we can do about that…again, thanks for the feedback.

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I like the discussions on several different topics. Too often people feel so alone in their pain, like me, and it’s nice that we can support each other, share our experiences and bounce ideas of one another. Thanks for allowing people who feel comfortable posting comments about their lives to have such an arena. It’s another support system………..

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What I like best of all about the Mayo Clinic and its web site is the fact that they employ BOTH allopathic and alternative approaches to help people. This, to me, helps to lower my ‘resistance’ to allopathy because I feel no ‘need’ to resist the ‘medical approach only’ routine… This means SO MUCH to me. It helps me to have confidence in myself and to relax into the knowing that I have ‘choices’…I need no resistance ‘against’…There are always options. THANK YOU so much for this, Mayo Clinic!! =)

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I was born on 4/22/1950 and have going to Mayo Clinic Rochester, Minnesota since 6/1950. Have had 99% of my medical work done there, about 25 surgeries, kidney transplant on 9/3/1981. The doctors have alwats listend to me when i say something about my medical problems and 99% of the time the doctors and nurses treat you well’

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WOW, I am a patient off and on at Mayo Clinic and had no idea this site was here.

Now my wish is we can all get the word out. My personal medical experiences are long and difficult and Mayo Clinic has been amazing. From the Chiefs right down the line each staff member is caring and skilled. Your staff are “nice”, to me that is huge— since “nice” doesn’t cost a thing! Now, if we can only get the world to recognize the benefits of your knowledge, research, treatment and impact. This is a great start!

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I just joined tonight and am impressed so far. The only confusing thing for me is the organization of the topics. It might be helpful to establish some educational links for health issues that are mentioned frequently in the discussions. Overall a great site.

Liked by jerry k

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I’m just joined and am hoping that I will find stories about patients who have been diagnosed with IBS and were able to find what was actually causing it. Hopefully, since the publication of books like ‘A New IBS Solution’ regarding SIBO several years ago, that mainstream medicine doesn’t treat IBS as a psychological condition anymore or assume that anti-depressants are the answer. I’m hoping I will find some stories about things like SIBO and adhesions as possible factors. Almost 30 years of this misery and I don’t know where to turn for real help!

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@deliasanderson

the mayo blog is great too. would like to see latest research on krabbes, leukodystrophies

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Iam yet to get a response to a case of keloid. If there is something new about its treatment.

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Please add a “search” feature.

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I joined a few minutes ago specifically to learn about patients actual experiences with billing and Medicare since my father is a FL and TX resident and he is about to have bladder surgery at Mayo Jacksonville.

I will keep looking, but isn’t payment a major health care topic? Is there a dedicated forum for billing/insurance/Medicare/payment?

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When someone asked about neurofeedback and something called (I think) Brain Optimization, I noticed several people who provided the service posted. How can we trust what someone says about a procedure he or she makes a living at?

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@larrys

I was born on 4/22/1950 and have going to Mayo Clinic Rochester, Minnesota since 6/1950. Have had 99% of my medical work done there, about 25 surgeries, kidney transplant on 9/3/1981. The doctors have alwats listend to me when i say something about my medical problems and 99% of the time the doctors and nurses treat you well’

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I have my first appointment on August 28th and I have a very complex medical history. When I asked about sending my records ahead, they said to brihg them with me. I can only be there for 3 business days. I’m concerned about getting things done. My first appointment is with internal medicine. Any suggestions?

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I appreciate the availability of so many different discussions. The only thing that bothers me a bit is that some people’s posts –say for instance–on Depression — appear on so many catagories…the same post on Depression in over 20 different catagories, when it has NOTHING to do with the catagory a person is researching. Apparently this happens when a person checks ALL possible catagories as what they are interested in.

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I just joined. It’s comforting to have a platform like this, to be able to interact with other people sharing the same concerns. Thank you.

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after joining discussions, have a small “how to work site”, i am 70 am not real computer savay (sp. either). there’s a lot on screen, which to do first and sequence, what each choice mean? i’ve been on but other choices don’t know how to operate first, last, etc. just a short step by step and what these other functions mean. thxs.

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