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We appreciate your feedback on the user experience in this Mayo Clinic site. What do you like? What areas could we improve? What additional resources would you like to see?
I like the clean and easy to navigate interface. Very good ! Congratulation for this milestone !
I think this is a great way for patients to connect with others; how will this site be “advertised” to patient so they are aware that it exsists?
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Thanks! We will have links and tiles on MayoClinic.org and MayoClinic.com, along with a landing page describing the community here: http://www.mayoclinic.org/connect/
Very cool Lee!
Hi Lee – I’m a new member. I am surprised however that Mayo doesn’t have Stiff Person Syndrome listed in health interests as Mayo is one of the main clinics for the disorder. Hopefully it can be added soon.
It’s a great idea though and I hope it goes well.
Thanks. You may have seen the content we have about this on MayoClinic.org. Maybe you could start a discussion thread about it here. http://www.mayoclinic.com/health/paraneoplastic-syndromes/DS00840/DSECTION=symptoms
Just curious if pregnancy could be considered for a possible category either now or in the future? It would be a great way for women to connect on their symptoms, fears, concerns, etc…
Good thought. We will discuss it at our planning meeting on Monday.
Great job, Mayo Clinic!
I’m grateful to Mayo for a host of reasons after being successfully treated for cardiac arrhythmias this past year. I learned about this new venture by happenstance earlier today and have two immediate reactions after impulsively setting up an account. First, I can’t see how to narrow the scope of the chatter to my particular area of interest. Truthfully, I don’t have time to wade through all of the conversations that are posted. I had decided last January that it would be valuable to help Mayo set up essentially a support group for AFib/AFlutter patients. We all need to get up to speed with language and concepts that are quite abstract and foreign as we learn how to manage life with these gremlin-like disorders. It seems that this online social network can be exactly that in a virtual way, but it would help if there was a “place” where we could gather for meaningful conversation. Second, one of the invaluable tools could be a link back into resources. I think about relevant journal articles, information about physical fitness, heart-healthy diet and cooking, advances in medications, or research studies. Make this a watering hole that is the first place I turn for the straight story about what’s new with arrhythmias. And then maybe in multiple languages or multi-media explanations. Maybe let us sign up for online conversations with one of your world-class cardiologists or Dr. Thomas Allison. We all have challenges that will never go away. I’m symptom-free right now and I want to keep it that way. Every day of my life I need to move and keep my cardio fitness level high. I need to eat ‘right” and keep my life in balance in a world that doesn’t function that way. Drugs are part of that equation, probably forever. I know I’m not alone in these challenges. For the first time ever, I really believe I’d benefit from participating in a Mayo-sponsored community to stay informed, stay motivated, and stay connected. Thanks for the opportunity to offer this feedback.
The previous comment is mine. I accidentally hit anonymous.
Hi, I just joined the Community so pls excuse me if I haven’t explored enough. I do have a couple of comments.
When I registered, the option to choose a state other than those in USA is not listed. Maybe ‘outside USA’ could be added to the drop down menu. I was able to enter Singapore as my country of residence. Given no other option under state, I just chose NJ as I have lived there for a few years.
I hope u don’t mind another comment: when I was choosing my areas of interest I could only choose from those conditions listed under ‘A’. I suggest that all letters A-Z be listed for our convenience, thanks!
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