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amber3212
@amber3212

Posts: 7
Joined: Mar 05, 2018

Weird Symptoms..Docs are puzzled.

Posted by @amber3212, Mon, Sep 24 1:10pm

Hi everyone. I posted earlier about hypokalemic periodic paralysis for my mom. A Neuromusclar Specialist in TX (Dr. Trivedi) says does not have it. Since then she has developed more symptoms.
She still "loses movement" from her neck down but it she said this time it feels like her arms and legs are just too heavy to lift. She is completely exhausted and the littlest things wears her out (shower, bathroom)
Some days she can walk with a cane, some days she has to use a Walker or a wheelchair. It seems like every day is different. She also has high blood pressure spikes ranging from (180-200/100-110) and heart rate spikes (100-125 bpm.) Shes had multiple tests done, MRIs, (cervical,thoracic and lumbar) CT scans, blood tests, chemical stress tests, thyroid function tests, 24 hour urine tests, and just recently had an EMG and a skin Biopsy does that did say she is positive for "Small fiber polyneuropathy".
Some days she gets up to walk and can't take the first step, because her legs start to tremble, and she gets very shaky
She says it's like her feet are glued to the floor. Then once she starts going, she either walks good, or walks very slow and shuffles. Sometimes sitting up her whole body starts to shake..
But all of her tests come out normal. Does anyone else have these symptoms?
Can small fiber polyneuropathy cause all of this or do you think there is an underlying cause?
Thank you.

REPLY

Hello @amber3212, I have small fiber peripheral neuropathy with only numbness in my feet and ankles. I have no medical training or background but I believe some of the symptoms your mother has could be those of small fiber polyneuropathy. Here is a page that lists some of the symptoms:

What is Polyneuropathy?
https://www.healthline.com/health/polyneuropathy

The EMG and skin biopsy are tests used to diagnose PN. Has your mother met with a neurologist?

John

@johnbishop

Hello @amber3212, I have small fiber peripheral neuropathy with only numbness in my feet and ankles. I have no medical training or background but I believe some of the symptoms your mother has could be those of small fiber polyneuropathy. Here is a page that lists some of the symptoms:

What is Polyneuropathy?
https://www.healthline.com/health/polyneuropathy

The EMG and skin biopsy are tests used to diagnose PN. Has your mother met with a neurologist?

John

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Yes she is meeting with him for the follow up. They said the tests showed small fiber polyneuropathy. Thank you I will look that up! I was concerned of possible MS also.

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