Anyone have Waldenstrom's AND Multiple Myeloma?

Posted by glueski @glueski, May 22 7:45am

I am waiting to review my bone marrow biopsy to see if I have both!
Anyone else with a similar diagnosis ?

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tracypage | @tracypage | May 23 7:39am

Yes, I have cells for both and the MYD88 mutation so they are not treating either until they are sure which way I am going. The treatments are very different. I have symptoms of WM but more MM cells than WM.

glueski | @glueski | Jun 28 7:13am

Original diagnosis was Waldenstroms.Received a second opinion that added Multiple Myeloma

bloodguy | @bloodguy | Jun 29 7:08am

In reply to @glueski "Original diagnosis was Waldenstroms.Received a second opinion that added Multiple Myeloma" + (show)

I have WM only at present. Mayo expert, Parshant Kapoor,MD recently gave a presentation at IWMF convention on multiple medicines in the pipeline and/or available for treatment of WM and I would think the same is true for MM. It is available on UTube and encouraging.

mackenzies | @mackenzies | Jun 29 9:06am

In reply to @glueski "Original diagnosis was Waldenstroms.Received a second opinion that added Multiple Myeloma" + (show)

From BMB in 2024 told I had Smoldering Multiple Myeloma and Indolent B-cell lymphoma with Plasmacytic differentiation(LPL vs MZL). I do have the MYD88 L265p mutation. Repeat BMB in May 2026 & now they say LPL vs MZL(less likely) and no Smoldering MM. I am bi-clonal and my IgG has always been higher than my IgM.

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