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yellersam

Waldenström's Macroglobulinemia

Posted by @yellersam in Cancer, Jan 31, 2012

Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer. How severe would that be compared to other patients? He also falls into the high risk category. Has anybody here with WM fall into the high risk category as well?
Much thanks to all!

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dcp45

Posted by @dcp45, Thu, Jan 19 at 9:16pm CST

Just wondering if anyone else with this diagnosis

colleenyoung

Posted by @colleenyoung, Fri, Jan 20 at 8:21am CST

Welcome to Connect, @dcp45.
I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia. You may also be interested in this discussion thread.
- Waldenstroms and amyloidosis http://mayocl.in/2dOVhlz

DCP - is this a recent diagnosis for you? We look forward to getting to know you.

dcp45

Posted by @dcp45, Fri, Jan 20 at 11:38am CST

Thank you for the link.
I was diagnosed in early 2014 with Stage IVA lymphoplasmacytic lymphoma/Waldenstrom's Macroglobulinemia with concomitant T-large granular lymphocyte leukaemia complicated by severe neutropenia

colleenyoung

Posted by @colleenyoung, Fri, Jan 20 at 4:03pm CST

DCP - What treatments have you had or currently undergoing? Is the neturopenia managed by transfusions or G-CSF injections? Do you have to manage low red blood cell counts as well as the white blood cells?

@azjulie - how is your husband doing? What treatment is he having?

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