Vulvar cancer

Posted by jmgm @jmgm, May 2, 2012

I was recently diagnosed with vulva cancer…(stage 2 squamous cell) .the doctor wants to operate —– ,,operation will include removal of clitoris…..therefore, I asked the doctor for another option, prior to the operation, that could shrink the tumor which is now 2.2 centimeters in size.

I have been given the option of chemo only from one doctor and chemo and radiation together (referred to as “chemo rads” ) from another doctor

Both options have the hope of shrinking the tumor …. My thinking is that if the tumor shrinks, I can save the clitoris and have less radical surgery. Has any one had any similar experience? I am desperate for information . Both doctors want to perform operation first…. Has anyone had radiation in the vulva area? Or chemo? Please respond thank you

@lky2balive

Hi jmgm….I was diagnosed with vulvar cancer may 27th of this yr…I was stage 3… I had my surgery in June….I realize that you are concerned about ur clitoris and I was concerned about mine as well… and I will tell u that with this stage you will get the most excruciating pain that u will ever experience…. It is not fun…. I don’t know if u have any children but my recommendation is to think hard about ur priorities and think about ur mortality projections….. As the stage progresses, ur mortality percentages decrease…I had a successful surgery and I still have a long journey…. The surgery is only the beginning…just one final thought….I am not a doctor and I don’t want to be one….if u have a good reppore with ur doctor and u have had second assessments of ur condition, I recommend listening to ur doctor…the information available can be confusing…I am glad I listened to my doctor because everything she has recommended for me aligns with what is being recommended from other sources…. I feel that I have a fighting chance to survive this and to be alive for my children…..good luck with ur decision and I wish u well…..

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Was the shrinking obvious after two weeks? I am terrified at the thought of chemo but I am swallowing my fear and agreed to try it, a week at a time with stopping my choice!

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@jmgm

how are you doing….i have finished 2 rounds of chemo in order to shrink the tumor before my surgery.

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Looking for members who are still active in group. Are you available for discussion?

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