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Posts: 1
Joined: May 06, 2012

uterine fibroid embolization

Posted by @shell7845, May 6, 2012

I have been dealing with several different health issues. FirstI have dealt with stomach problems my whole life, constipation, bloating, and pain in my colon. Was told I had IBS and I learned how to control it pretty well. I have had two hospital stays in 10 years for infected, inflamed bowels, once with a perforation, that did heal without surgery. I finally had a colonoscopy and found I have diverticulitis on my left side and a large twisted bowel on my right side. The two hospital stays were each for the 1 problem. Surgery isn’t really an option because I would have no colon left, So now I live with the fact that I could have another attack at any time, since I’m already doing all the right things to ovoid attacks. Next is my other problem, numerous, large fibroids causing me to bleed all the time. Have been bleeding for 5months straight. My uterous is enlarged and tilted, even a pelvic exam is painful. It blocks my bladder and colon. The GI doctor said my uterous is blocking my colon but the other doctors don’t agree because they say all women think that but it rarely occurs. Because of all my bowel issues my doctor didn’t want to do a hysterectomy plus I had umbilical hernia surgery so she said abdominal surgery was risky. I got talked into doing Uterine fibroid embolization because it was less invasive and quick recovery, a few days of period like cramps and tired for a week. Well I had it and it was the biggest mistake of my life. I have been in bed for 6 days with flew like symptoms and the labor like cramps. I have had 4 children so I know what labor feels like. I have been living on percocet and now its affecting my stomach, I’m afraid I’m going to ave another bowel infection, I can’t believe how much pain I am in, I was lead to believe this would be no big deal, my friends who had hysterectomies were up and in less pain than I am in. I had no attachment to my uterous and my doctor knew this and to top it off Im still bleeding and this procedure could take months to work. Im so depressed and upset and so sick of being in pain. I don’t know anyone else who has had this done. When i called the doctors office they said some women have more pain like me and i have to just get through it. Im scared that I will never feel normal again.



Posts: 8
Joined: May 13, 2012
Posted by @trishie, May 14, 2012

I just read your post trying to find something about pelvic floor dysfunction. I haven’t had what you have had done, but I did have a hysterectomy at age 40 and it took me 8 weeks to get better. It was a very hard surgery for me. Every woman is different and don’t expect to be like your friends, since you have already had so many health issues. You seem to be a lot like myself with the health problems. So from someone who is probably older, try not to get depressed, DO some deep breathing to relax, and know that if noone else listens, I will try to be on here at least once a week. I have so much pain right now, I can hardly sit and I am trying to find something to sit on, trying to find a doctor who believes I have real pain, and a support group. Please take care and know that there are others who care about you and will listen. Keep researching and fight…don’t be afraid to ask questions, what next, change doctors, etc.

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