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pamelasc1
@pamelasc1

Posts: 88
Joined: Feb 25, 2016

use of Incruse for MAC and bronchiectasis

Posted by @pamelasc1, Mon, Oct 15 1:43pm

Has anyone taken and stayed on this once a day inhaled medication? I take Spiriva with it as I was short of breath and my lung doctor recommended that I add it to my regimen. I have been less breathless but wonder if I could go off of it to see what happens. I have been on it for a month, with no side affects. I would love to have some feedback from anyone who has been taking it for awhile. Thanks, Pamela in MA

REPLY

@pamelasc1, I have never heard of Incruse. I have a question, if it's working for you, and you don't have side-effects; why do you want to stop taking it?

Hi @pamelasc1,
I looked up Incruse Ellipta (umeclidinium) and see that it is "used to control and prevent symptoms (such as wheezing, shortness of breath) caused by ongoing lung disease (chronic obstructive pulmonary disease-COPD, which includes bronchitis and emphysema)." https://www.webmd.com/drugs/2/drug-167459/incruse-ellipta-inhalation/details

Do you also have COPD? Has it helped your shortness of breath? How are your MAC and bronchiectasis being treated?

My use of Incruse has helped my shortness of breath. I have only been on it a month and I was considering stopping because maybe I should save it for later, when my breathing gets worse. I was treated sccessfully for MAC two years ago with the 18 month regimen of the 3 big drugs. I have had pseudemonas (now cleared up) and I have the fungus aspergillus, which may always be present. I take Spiriva twice a day and that was all I was taking for some years. Even with that, the shortness of breath began early this year for the first time. I do not like adding in meds if I do not have to. I would like to go off the Incruse to see if my breathlessness comes back. It seems no one out there has knowledge of this drug, so I gather it is on the newer side. It is used to treat COPD but that is not what I have. I was diagnosed with MAC, bronchiectasis, pseudemonas and aspergillis, all of which have damaged my lungs. I can get pneumonia easily ,if I catch a cold, so have to stay away from sick people! Pamela

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