Update on my mom

Posted by amy @asugent, Jan 6 8:38am

So, a lot has happened in a short period of time. For those following my story, you know my mom (after almost 3 years of NED) was dx with metastatic disease to the left adnexa (left ovary – infiltrating the bladder wall). Surgery is not an option bc she only has one kidney and they figured this is already in her system so why put her through a rough surgery for little benefit. We were devastated but understood the logic. I started to imagine life without my mom, panic ensued, crying, and general disbelief. A few days ago, while at work, I get a text from my mom that read, "Are you ready for some good news for a change?" I called her immediately. She explained that her radiologist thinks he can target the tumor. He said he's been at every tumor board meeting that discussed my mom, he knows her case inside and out, and he thinks he "can get it." He was quick to say this wasn't a cure (only 10% chance of that), but this could buy her more time. Naturally, we're elated. I also took the advice of many of you on this site and had my mom reach out to PanCan. Turns out she is eligible for about 3 different clinical trials, all right here in town! Why hadn't her oncology team told her of this? Goes to show you need to be your own advocate. Anyway, again, we know this isn't a cure and my mom will most likely pass away from this awful disease. But more time with her is a gift that we hope to receive through aggressive radiation. Here's hoping! To everyone out there reading this, please don't ever give up. My mom has a saying, "Go out swinging!" My mom is so brave and truly at peace with whatever comes – and no, she is not religious. This is the hardest thing I've ever been through, watching my mom sick, navigating the health care system, and oh the constant worry! And I mean worry to the point of losing 10 lbs in 2 weeks! Thank you for those who have reached out with hope and advice. May we all be given more quality time, and may a cure be on the horizon!

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@asugent Hello Amy,

I so enjoyed reading your post. I'm so pleased to hear that your mom has been proactive in getting treatment and that she is actively reaching out to doctors and other organizations like PanCan. She sounds like a proactive and resourceful person. Those characteristics are very important when you are dealing with a difficult disease like this one.

I can tell you are pleased and proud of your mom for her diligence in seeking out answers and treatments. I look forward to hearing from you again. Will you post again and let the group know how your mom is doing?

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