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michaelpaydos
@michaelpaydos

Posts: 2
Joined: Mar 05, 2012

Upcoming event for people with Meningiomas

Posted by @michaelpaydos, Mar 5, 2012

Just thought I would share an upcoming event that may be useful for a lot of folks here. Meningioma Awareness Day will be held in Boston this April 27 & 28. Will include one-on-one Q&A with medical professionals experienced with meningiomas, plenty of opportunities to meet others with this brain tumor, and a number of lectures/talks ranging from wellness strategies to new research. For more information: http://www.brainsciencefoundation.org/bAttendbEvents/UpcomingEvents/MeningiomaAwarenessDay/tabid/318/Default.aspx

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chacha48329
@chacha48329

Posts: 4
Joined: May 15, 2012
Posted by @chacha48329, May 15, 2012

I am new to the Mayo community. I just read this post and I was surprised to hear there was a day for awareness of Meningioma. I was diagnosed with a large meningioma in the brain stem in 2004. I had surgery. 7 years later I am having radiation. I would love to meet either in person or online other people who share this type of tumor in the brain. I am in Waterford, MI. Is there another special event like the one in Boston?


purpleflower27
@purpleflower27

Posts: 3
Joined: Aug 29, 2012
Posted by @purpleflower27, Aug 29, 2012

I have just been recently diagnosed with a meningioma tumor. so just looking to visit with others who are or have been in same situation.


chacha48329
@chacha48329

Posts: 4
Joined: May 15, 2012
Posted by @chacha48329, Aug 29, 2012

Hello, I was diagnosed in 2004. I had a major surgery and they removed about 1/2. It is on my brain stem. Where is yours? What hospital diagnosed you? What symptoms were you having? I am in South eastern Michigan. I am 39 years old. What about you?


purpleflower27
@purpleflower27

Posts: 3
Joined: Aug 29, 2012
Posted by @purpleflower27, Aug 30, 2012

My tumor is on the meniginoma of the brain. Right side they tell me. To close to the optic nerve to be safe and then also wrapping around a major blood vessel. I will be having surgery at the Mayo Clinic in Rochester MN. I live in southern MN. Close to Rochester. I am way older then you. I am 62. Darn thing to get at this age.

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