Ulcer, chronic gastritis, Nissen - Endless stomach problems

Posted by gabigirl26 @gabigirl26, Mar 11, 2019

I can't find my original post so sending this as a general question/second opinion. I have had 3 Nissen Fundoplication repairs to fix a large hiatal hernia that migrated to my chest cavity. The first two came undone within 1 year. The third time they did the repair and also a Wedge Gastroplasty to make my esophogus longer. I have had chronic nausea ever since but dealt with it without many issues. I continued to have to be on reflux meds due to this nausea. Went to a new GI since the past few months swallowing feels difficult or uncomfortable and have been having pain unrelated to eating meals. Hurt with meals and sometimes without. Had an EGD and they saw an ulcer and chronic gastritis. Nissen is in tact. Barium swallow showed no abnormalities. Now i am on meds for the ulcer, increased reflux meds, and on a bland diet until the end of next month when they check on the ulcer again. Has anyone else had this many issues with their stomach? I am starting to feel like it will never be better. It is always something every time. I have had to visit the ER several times for the pain. Any one have thoughts on this? Thanks!!

Interested in more discussions like this? Go to the Digestive Health group.

I HAVE BEEN READING THROUGH THE POST’S ON DIGESTIVE HEALTH AND FOUND HELPFUL INFORMATION. ONE THING I HAVE READ IN A FEW OF THE POSTS IS DRINKING FLUIDS. I CANT BECAUSE ITS MY ENEMY DUE TO SURGERY I HAVE HAD. FLUID PUTS A WALL UP NOTHING CAN GET THROUGH LIMIT TO DIFFERENT TIMES OF THE DAY. I HAVE TO USE A LASIX FOR RELEIF. I DO RETAIN FLUID AND NEED HELP TO EMPTY MY BLADDER. THIS AREA OF MY BODY HAS A NUMBER OF PROBLEMS. IF THERE IS ANY ONE OUT THERE THAT MAYBE HAVE SOME ADVICE I WOULD APPRECIATE IT. THANKS TERESA

REPLY
@fde11

hello Gabgirl26, i have an ulcer too,first i had an h-pylori, taken a lot of antibiotics, after i went for a gastroscopy and was told i have an ulcer, i am taking prilosec, but i still have pain in the stomach and also in my right hand side, i was wondering if you have the same symptoms, ty in advance, hope for a reply

Jump to this post

I am sorry to hear you are going through that. I have been having so much pain for a while now. I was told after my last gastric emptying study that I have severe gastroparesis but that not much you can do about it. I am not convinced my pain is all from my ulcer because they said it is small. I have had multiple Nissen surgeries and feel like I have never been the same since. I am on Sucralate twice a day which helps with the ulcer I think. Have they had you take anything other than prilosec? They have me on Protonix, Sucralate, and Zantac. I hope you can get some help soon!! Probiotics are so important when taking antibiotics

REPLY

I was going through similar situation with my nissen. Having that done was worse thing I ever had done. Still had reflux but I also had delayed gastric emptying, bloating, hypoglycemia, all from the nissen. I searched and went to a different doctor. On 3/15 I underwent a gastroectomy where they removed 80% of my stomach and reconnected my intestines in a y. Even though it's only been a week and a half I already have relief. I have no reflux, no sugar drops. I now just have to heal

REPLY
@claytamos

I was going through similar situation with my nissen. Having that done was worse thing I ever had done. Still had reflux but I also had delayed gastric emptying, bloating, hypoglycemia, all from the nissen. I searched and went to a different doctor. On 3/15 I underwent a gastroectomy where they removed 80% of my stomach and reconnected my intestines in a y. Even though it's only been a week and a half I already have relief. I have no reflux, no sugar drops. I now just have to heal

Jump to this post

Hi, I had my Nissen reversed on 2/28. It has been approximately 4 weeks and my digestive system is thankful for it. I don't have reflux really at all, but I do still have gas build up especially after I void. Do you experience that? If so, has any of your doctors pinpointed where it is coming from and how to eliminate it? I appreciate any feedback that you can give on this if any. I pray that you would heal quickly and get back to doing the things that you couldn't do with your digestive problems. Have a great day.

REPLY

I had bloating and gas all the time after the Nissen. They suspended they damaged the vagus nerve during the Nissen surgery. For me Pepto pills worked best. But Pepto can constipate you if you take too much. Try that or simethicone. It's too early to tell if the new surgery has corrected that.

REPLY
@claytamos

I had bloating and gas all the time after the Nissen. They suspended they damaged the vagus nerve during the Nissen surgery. For me Pepto pills worked best. But Pepto can constipate you if you take too much. Try that or simethicone. It's too early to tell if the new surgery has corrected that.

Jump to this post

TU for replying. My doctor had suggested that I take simethicone and I did but it doesn't work too well for me. Before I had my reverse, I saw my gastro doctor who told me that I have an upper and lower digestive problem. I believe that the reverse nissen helped the upper but now I am still trying to find out what is causing the lower. The surgeon told me to try GasX. It helps some but the problem still exists. I also use DGL which helps to alleviate the gas in the colon. So I will keep searching.

REPLY
@faithful55

TU for replying. My doctor had suggested that I take simethicone and I did but it doesn't work too well for me. Before I had my reverse, I saw my gastro doctor who told me that I have an upper and lower digestive problem. I believe that the reverse nissen helped the upper but now I am still trying to find out what is causing the lower. The surgeon told me to try GasX. It helps some but the problem still exists. I also use DGL which helps to alleviate the gas in the colon. So I will keep searching.

Jump to this post

Try the Pepto pills. I would take a stool softener with the Pepto so I wouldn't get constipated. It helped me. Good luck to you. Digestive issues are no fun.

REPLY
@claytamos

I was going through similar situation with my nissen. Having that done was worse thing I ever had done. Still had reflux but I also had delayed gastric emptying, bloating, hypoglycemia, all from the nissen. I searched and went to a different doctor. On 3/15 I underwent a gastroectomy where they removed 80% of my stomach and reconnected my intestines in a y. Even though it's only been a week and a half I already have relief. I have no reflux, no sugar drops. I now just have to heal

Jump to this post

@quiteachiver76 WHY DID YOU HAVE 80% OF YOUR STOMACH REMOVED.HAVING IT RECONNECTED TO YOUR INTESTINES HOW LONG DOES FOOD TAKE TO PASS THROUGH YOUR DIGESTIVE TRACK ARE YOU ON ANY SUPPLEMENTS TO HELP YOUR HEALTH. I UNDERSTAND IF YOU DONT WANT TO ANSWER MY QUESTIONS THANKS

REPLY
@quiteachiver75

@quiteachiver76 WHY DID YOU HAVE 80% OF YOUR STOMACH REMOVED.HAVING IT RECONNECTED TO YOUR INTESTINES HOW LONG DOES FOOD TAKE TO PASS THROUGH YOUR DIGESTIVE TRACK ARE YOU ON ANY SUPPLEMENTS TO HELP YOUR HEALTH. I UNDERSTAND IF YOU DONT WANT TO ANSWER MY QUESTIONS THANKS

Jump to this post

I had several issues with my digestive system. I had a Nissen that did nothing but make things worse. My esophagus wasn't pushing through anywhere close to what it should. My stomach was producing too much acid, it was backing up into my lungs. I had delayed gastric emptying where food was sitting in my stomach up to 8 hrs. This was also causing nutrition problems. Food was getting destroyed in the stomach before it could get to my intestines where nutrition is absorbed. It was causing me to be hypoglycemic. By removing most of my stomach and fixing the connection of the intestines none of that is happening. Tomorrow will be 2 weeks since surgery and my sugar hasn't dropped once, haven't had any reflux, just healing pains. I've been on a soft foods diet since surgery. Tomorrow is my first appointment after surgery. I know I'll have blood test to see how things look. They told me it's about a 6 week recovery to start getting back to normal.

REPLY
@claytamos

I had several issues with my digestive system. I had a Nissen that did nothing but make things worse. My esophagus wasn't pushing through anywhere close to what it should. My stomach was producing too much acid, it was backing up into my lungs. I had delayed gastric emptying where food was sitting in my stomach up to 8 hrs. This was also causing nutrition problems. Food was getting destroyed in the stomach before it could get to my intestines where nutrition is absorbed. It was causing me to be hypoglycemic. By removing most of my stomach and fixing the connection of the intestines none of that is happening. Tomorrow will be 2 weeks since surgery and my sugar hasn't dropped once, haven't had any reflux, just healing pains. I've been on a soft foods diet since surgery. Tomorrow is my first appointment after surgery. I know I'll have blood test to see how things look. They told me it's about a 6 week recovery to start getting back to normal.

Jump to this post

Wow! It’s scary to think of having a large amount of your stomach removed. 🙁 But I am glad you seem to be improving! I have an appointment with the surgeon that did my surgery back in 2012. He is concerned about my symptoms. Not sure what he will say. I hope you have a speedy recovery!! Thanks for sharing

REPLY
Please sign in or register to post a reply.