Trigeminal neuralgia

Posted by denny2788 @denny2788, Aug 29 5:03pm

What is good for triameglia neuralgia type 2 bilateral to stop the pain

The only thing any of my Drs. have prescribed (and that was my neurologist) was/is Lyrica. Switched to generic about 6 mos ago & that is working fine so far. Been on Lyrica for about 15 yrs. Recently my ortho surgeon's office said that Lyrica breaks down the ends of bones. Haven't heard this before. Gonna ck into this further.

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@cathen48

The only thing any of my Drs. have prescribed (and that was my neurologist) was/is Lyrica. Switched to generic about 6 mos ago & that is working fine so far. Been on Lyrica for about 15 yrs. Recently my ortho surgeon's office said that Lyrica breaks down the ends of bones. Haven't heard this before. Gonna ck into this further.

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Thank you is Lyrica hard to tolerate? Did you ever try injections? Very scared my symptoms are just starting to progress. Did you get the covid shot. Does trigeminal neuralgia progress quickly. Are you always in pain? Thank you very much.

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@denny2788

Thank you is Lyrica hard to tolerate? Did you ever try injections? Very scared my symptoms are just starting to progress. Did you get the covid shot. Does trigeminal neuralgia progress quickly. Are you always in pain? Thank you very much.

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Thank you so much. How long have you had tn2. Please don't get affected me asking you a lot just figured out what I have. It seams like it progresses very quickly. Do you have ringing in your ears? I am very scared that is why I am asking you a bunch of questions.

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@denny2788

Thank you is Lyrica hard to tolerate? Did you ever try injections? Very scared my symptoms are just starting to progress. Did you get the covid shot. Does trigeminal neuralgia progress quickly. Are you always in pain? Thank you very much.

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Good morning. The ONLY thing about Lyrica was when I first went on it it made me very tired for about a week & the paperwork that came with it said this was one of the side effects. Otherwise no problem w/it. Never was offered or had any discussions about any injections. When the trigeminal neuralgia showed up my neurologist upped the Lyrica dosage by 100 mg. (I was on 200 mg. I've remained on 300 now for about 5+ yrs.) Pain has not worsened nor can I tell you the last time I had any discomfort/pain from it. I was told that I would have to be on the Lyrica for the rest of my life by the neurologist (but I was already on the Lyrica for my neuropathy – both feet – anyway). Both my husband & I have had both COVID injections. No problems with these either. Considering doing the booster inj. but waiting to see what progress how this works out for others first.

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@cathen48

Good morning. The ONLY thing about Lyrica was when I first went on it it made me very tired for about a week & the paperwork that came with it said this was one of the side effects. Otherwise no problem w/it. Never was offered or had any discussions about any injections. When the trigeminal neuralgia showed up my neurologist upped the Lyrica dosage by 100 mg. (I was on 200 mg. I've remained on 300 now for about 5+ yrs.) Pain has not worsened nor can I tell you the last time I had any discomfort/pain from it. I was told that I would have to be on the Lyrica for the rest of my life by the neurologist (but I was already on the Lyrica for my neuropathy – both feet – anyway). Both my husband & I have had both COVID injections. No problems with these either. Considering doing the booster inj. but waiting to see what progress how this works out for others first.

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Got brave got Mt 1st shot yesterday so far so good. Have an appointment set up for injections in October. Thank you very much for all your help. Do you have tn1 or tn2 or both. I have both. I might have to try that lyrica.

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@denny2788

Got brave got Mt 1st shot yesterday so far so good. Have an appointment set up for injections in October. Thank you very much for all your help. Do you have tn1 or tn2 or both. I have both. I might have to try that lyrica.

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I'm sorry I didn't reply sooner. I forgot. My neurologist hasn't ever said tn1 or tn2 but when I looked up the term. – I don't have tn2. I caught mine in the very early stage. I thought I had a problem w/my tooth and/or jaw.

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@cathen48

I'm sorry I didn't reply sooner. I forgot. My neurologist hasn't ever said tn1 or tn2 but when I looked up the term. – I don't have tn2. I caught mine in the very early stage. I thought I had a problem w/my tooth and/or jaw.

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Your lucky you caught it early. I had a root canal done last July. I got mrsa from it was hospitalized 2 weeks. I have been to a dozen or better doctors nobody knew what I had. I finally am getting somewhere wish I had this doctor in the beginning
I did not give up I keep going to different ones it paid off finally. Thank you

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@denny2788

Thank you so much. How long have you had tn2. Please don't get affected me asking you a lot just figured out what I have. It seams like it progresses very quickly. Do you have ringing in your ears? I am very scared that is why I am asking you a bunch of questions.

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Hello I’m 44 year old female. I’ve had migraines everyday since June of this year. Went to the er because i thought it was my colloid cyst on my left side. They did X-ray witch showed a small growth. They would send me home with migraine meds nothing worked. Finally went to my dr September 16. Told him migraines everyday face swollen since August 11 everyday. He put a referral in for me with a neurologist waiting for them to call me. He gave Divalproex dr 250 mg it kinda helps with the pain with about 25%. He seems to think I have trigemial neuralgia. I’ve had to put a leave of absence in at work cause my head hurts so bad. Wondering if I caught it in time.

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@57r

Hello I’m 44 year old female. I’ve had migraines everyday since June of this year. Went to the er because i thought it was my colloid cyst on my left side. They did X-ray witch showed a small growth. They would send me home with migraine meds nothing worked. Finally went to my dr September 16. Told him migraines everyday face swollen since August 11 everyday. He put a referral in for me with a neurologist waiting for them to call me. He gave Divalproex dr 250 mg it kinda helps with the pain with about 25%. He seems to think I have trigemial neuralgia. I’ve had to put a leave of absence in at work cause my head hurts so bad. Wondering if I caught it in time.

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i have Idiopathic neuropathy and its in my head neck shoulders arms hand both my legs and feet even between my legs. In others words whole body. I had it for almost 3 years and its starting to get worst. taking pregabalin 300 daily along with duloxetine 30mg along with celecoxib 400mg daily. I am afraid it will take my eyes and hearing along with my limbs which leaves nothing left to work with except pain and pills. I am looking into stem cell therapy, prednisone or IVIG therapy. If anyone has had any success with the above mention treatments I would love to hear from you.

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Hi , I’m so sorry to hear your in my prayers I don’t know anything about anything I’m so new to all of it. My neurologist appointment is this coming Monday I’ll know more about what’s going on with my head. I’m keeping you in my prayers.

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Does anyone have bilateral tn1 and tn2. I have both but I get very sick when taking pills. Put on nortriptyline 10 mg took it for a while got worse so I had to take 2. Started on 3 after 2 weeks got very sick from the pills. Started taking less pain starting to come back. I am no good with any kind of pills make me very sick. Has anyone had injections or surgeries for it? Does anyone have any suggestions for what I can do

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@denny2788

Does anyone have bilateral tn1 and tn2. I have both but I get very sick when taking pills. Put on nortriptyline 10 mg took it for a while got worse so I had to take 2. Started on 3 after 2 weeks got very sick from the pills. Started taking less pain starting to come back. I am no good with any kind of pills make me very sick. Has anyone had injections or surgeries for it? Does anyone have any suggestions for what I can do

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@denny2788 you will notice that I have moved your post into an existing discussion on TN so that you may read through the discussion as well as connect with members such as @ingo who has also expressed concerns with tolerating medications.

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