Have had long-term Essential Tremors: Worried it might be more?

Posted by kingrc2 @kingrc2, Dec 31, 2025

I have been diagnosed with benign essential tremor since I was in my teens and am now 53. I did have DBS surgery when I was 46 and it was a game changer for me but my shaking is getting worse. Does anyone else worry about maybe it’s something more like PD? I will wake up know with my hand/forearm shaking a little.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Are you still seeing a neurologist regularly? Your sns unit battery may need adjusting or replacement? Mine needs recharged weekly and adjusted by the neuro team every 6 months. It has a 5 yr life before replacement

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