What helped your seizures: Treatment Center? Neurologist? Home care?
Has anyone improve there seizure symptoms via treatment center, neurologist, or home caregiver. Of the following which one was more effective.
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@santosha I can understand that a calmer approach is the new treatment for my supposedly diagnosis as science will clear my next move. Rather theraphy or treatment that is the goal I need is to be able to change the game on waiting for the final results. I may have new evidence that calm me down just 12/11/2025 another deadly symptom arrive I dont have paid 24hr asssistance the Van Buren Housing situation oversees and was able to call EMS for care vital very vital. Once my results from my horomones I believe are in then they may be associatee with taking on too much. A lighter schedule could be made with the rest in the future right now just take meds and live thank you. I understand health I am from Michigan which is the most leading hospital so for Ohio Health to know HFHS perfect another relief very stressful trusting a Emergency Room Doctor so for the 4 time things have been corrected.
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2 Reactions@27angel
When my seizures got worse and my memory started to decline, my first reaction was to fight back. But honestly, that approach hurt me more than it helped. The harder I fought against the changes, the more painful they became to accept.
What really helped was learning to accept these changes instead of trying to continue with my life as it once was. That acceptance gave me a sense of peace and helped me find my smile again.
There's a principle in yoga called Ahimsa that was a true game-changer for me. It means "non-violence" or "non-harming"—including toward ourselves. I realized that trying to fight back was actually a form of violence against myself.
Please try to be as gentle as possible with yourself right now, especially while you're waiting to start treatment that will help you feel better.
Chris
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8 ReactionsI was diagnosed with Focal Epilepsy at age 78yrs!! I go to Mayo Clinic Phoenix. At first they thought it was Migraine Amnesia but the medication did not work and then after more tests it was Focal Epilepsy and it was two years ago this month I started taking Keppra and have Not had another Serizure. I see my Mayo Clinic Neurologist every 6 months.. He actually lowered my medication some which helped not being so tired. Mayo Clinic has been great for other medical issues I have. I feel very grateful.
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6 Reactions@santosha I agree I find having too much going as I did before the seizure I just dealing with everything I can control. Which is getting help with this sudden event It feels so good just to be able to focused on the basics healing instead of the usually 300 hundred thoughts that I need to help so many now I just need to feed my brain small amounts we took it hit that on only certain kind of Humans understand why we just cant after this I appreciate our support group I will be headed to the neurologist soon.
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1 Reaction@27angel
Now I'm getting a clearer picture. Thank you for being patient with my questions—I wanted to understand your situation better so I could be more helpful.
I know how it feels to lose track of things. Please try to be as kind to yourself as possible during this difficult time.
I hope you'll soon be able to get proper care and a full diagnosis, followed by the right treatment for you.
If I can help in any way in the meantime, please don't hesitate to reach out.
Chris
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2 Reactions@santosha I left the hospital not understanding so I am waiting for insurance to go back
I was not given medication due to being able to understand why am I here I just wanted to leave and I don't why I felt I was ok I compared laying outside with no response. When Ohio health brought me back I felt I was ok to continue living I had the seizure on 11/16/2025 I start declining on 12/7/2025 my memory just was there I realize I had been on my daily routine loss on interest no hobbies, lost passwords, misspelled words, balance off, right eye blurry, can remembering why I arrive no memory from 5am to 9am those were the hours I get up jog create content just stay in bed memory just struggling.
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2 Reactions@27angel
Good Morning
I'm truly sorry you're going through this. I understand those memory gaps all too well – I experience them too, especially when my seizures aren't well-controlled. The good news is that once you begin working with a neurologist and find the right treatment, these gaps may improve. I'm hopeful that will be the case for you. 🙏
Can I ask – have you experienced any other episodes since June? And did the hospital prescribe any medication when you were discharged?
I'm hoping you'll get clear answers and a diagnosis soon.
Chris
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I am glad I have develop a pattern on here Monday thru Friday to engage with you all via text taking it slow even if the world spinning fast soon I be back to full capacity.
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2 Reactionsalso recording every day help talking to you, Youtube, TikTok and Facebook about this journey they have been in my followers life since 2010 everyone praying for a full recovery thank they just didn't meet they have seen my best down thru the years so to appear like this crazy.
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1 Reaction@royanthony Getting rest just does not help before I sleep problems retaining my everyday so resting makes me forget mote I fill so behind anyway so Monday thru Friday busy. Saturday and Sunday I be with friends resting did not work so I just read thru the night just to be able to spell and read its helps me even if it took 3wks for a 399 page book I working with myself because I need to its vital in my society.
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4 Reactions