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Trasvers Myelitis

Posted by @transversemyelitisalabama, Jan 11, 2012

Anyone here with Transverse Myelitis? I would love to share information with you and learn from you.



Posts: 2
Joined: Jul 03, 2012
Posted by @touringmn, Jul 9, 2012

I am just starting this adventure. I was labeled as possibly having TM following a series of MRIs and a LP. I was treated with the standard 1 G steroid IV. No changes yet in the past two weeks. But i understand – based on our research – that recovery can be as long as 12 weeks.


Posts: 2
Joined: Jul 03, 2012
Posted by @touringmn, Jul 20, 2012

So, you are offering to share information but do not read the site. I wish that you were keeping that commitment.

competitive trail

Posts: 1
Joined: Dec 14, 2012
Posted by @competitivetrail, Dec 14, 2012

Grandmother with M. S second cousin with M. S. My mother and cousin have blood work out there some where Sister with lupus. Myself 2005 Big toe started numbing traveled up for many years
Idiopathic until going to Cleveland clinic have not returned. Going to Allegheny Gen. Pittsburgh.
Azathioprine &baclofen Are the only medications I have been on which were given to me from Cleveland clinic. Now in therapy at health South doing the auto ambulator plus outpatient therapy-
/Muscle stimulator Five minutes.
I would be willing to Work with mayo clinic since my hereditary seems so strong. I am now a 45 year old woman with two daughters. Was very physically active at work after being laid off due to condition still continue to do as much as possible even working with miniature horses in which I have always enjoyed and now and now hippo therapy, When I can according.

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