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randalcoon

Tourette's Syndrome, with severe, complex vocal, but mostly movement disorders in my

Posted by @randalcoon in Just Want to Talk, Aug 4, 2011

Tourette's Syndrome, with severe, complex vocal, but mostly movement disorders in my 27 y/o son. He has been through so many doctors repeating the same old unsuccessful treatments since age 5, it is surprising how great a person he really is. Smart, very organized, and able to use his hands and mind with great coordination. But if you ask him a question, it may take him 2 mins of twisting [already had vetebral fusion from such movements], holding his breath and squeezing his internal organs, to the point HE feels afraid he may burst something. Certainly, it LOOKS that way. On Haldol, again, and again drooling zombie. I better stop. Thanks

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