Tired of the gaslighting

Posted by cwitton1 @cwitton1, Jan 5 8:24am

I am done.
No more doctors. They’ve gaslit me, passed me off, placated me with unnecessary tests, tried detrimental drug therapies. No more “specialists” who pass you along to the next because it’s “not my job”. They straight up don’t believe anything I say. I am done. This journey that started in 1989 with a case of mononucleosis has ruined my life. I am done chasing answers and being mentally traumatized by doctors’ lack of empathy or concern. I am tired of reading my after visit notes and finding errors- things we never discussed or blatant lies about being examined. I am sick to death of being told it’s just anxiety manifesting or my brain tricking my body to make it *think*there’s pain when “there isn’t”. There is pain. A lot of pain, and I do not wonder at all why people with autoimmune disorders or chronic conditions- chronic pain patients, take unthinkable measures. News flash:NSAIDS don’t do squat for pain. They only wreck your kidneys and liver. What I have learned in the last 35 years is you can trust no one but yourself. Doctors are not there to help you. Doctors are there to make money and feel important about themselves. Doctors refuse to tell us, “I don’t know.” I’m tired, and it’s become more of a self preservation technique to just walk away. No more visits. No more medications. Whatever will be, will be. Call me a quitter. I don’t care. We were brought up to think if you’re sick, go to a doctor and they will help you get better. If your pain is new or gets worse, go to your doctor. They will figure out the cause. This is bs. No one’s going to help you. No one’s going to believe you. You will begin to question your sanity and eventually come to the conclusion that you’re on your own. The power dynamic in medicine is huge. They may have paid for an education, but I am not stupid and I know my body. This is me, finally defeated, jaded and hopeless. This is me accepting that this is how the rest of my life will be, forever. It’s not an exciting, rosy prospect. This is me, and I am done.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

jdnc2023 | @jdnc2023 | Mar 30 1:38pm

In reply to @dlydailyhope "@jdnc2023 You are too funny!🤣 You made me laugh so thank you!🙂" + (show)

I also forgot to say that I didn't even give, nor was I asked to give a urine specimen! I feel like my life is an episode of Curb Your Enthusiasm sometimes!
I have a rheumatologist appointment coming up and I may have to be a Karen or Larry then, too. 🙃

dlydailyhope | @dlydailyhope | Mar 30 1:45pm

In reply to @jdnc2023 "I also forgot to say that I didn't even give, nor was I asked to give..." + (show)

@jdnc2023
Karen/Larry, don’t lose your wonderful sense of humor! 😁

barbbielor | @barbbielor | Mar 30 6:39pm

Chronic pain is poorly
understood or even cared about by many. It took my going to 3 pain management doctors before I found the right one. The first I simply didn't like. The second did a spinal tap in a room that was not clean. The third gave up dealing with my many allergies annoyed that a child's dose gave me a reaction and handed me off to another who called me and asked me to be his patient. That was twelve years ago. Why did he take me on? I was told it was because he feels everybody deserves the best treatment and he enjoys a chalkenge! Not only does he hold that attitude but he knows pain personally. I had fluid drained from my bad knee by another doctor in his office who I believe doesn't know much personally about pain. She gave me next to nothing for pain and I had all I could do to get out of the office. Never again I told him! He's the only one I will let do procedures on me. Besides the qualities I've mentioned about him, he is brilliant at what he does. I read about an upcoming procedure. It is very rare and most don't know how to deal with it, but he does. Finding the right doctor can be a challenge but so rewarding when it is accomplished. May you be blessed with the right doctor for you is my prayer.

pb50 | @pb50 | Apr 6 4:55pm

I ran across this today and though I’d put a link on this thread…

https://www.cnbc.com/2024/04/06/3-signs-its-time-to-break-up-with-your-doctor.html

paulieg | @paulieg | Apr 12 3:07pm

I'm new here, and this is my first post/reply. 4 years ago I was hopeful when I started getting treated, but then... Well let's just say you just typed up the whole paragraph describing my feelings. I've never said it out loud... And I tried to bite my tongue around the doctors but, I feel like a guinea pig, a lab rat. They don't have a cure so somebody has to be the test dummy. I might be playing an important part in the discovery of a cure... I just wish I was treated as such

adohracapella | @adohracapella | Apr 13 11:46am

That’s why it’s called the PRACTICE of Medicine

pb50 | @pb50 | Apr 13 12:07pm

In reply to @adohracapella "That’s why it’s called the PRACTICE of Medicine" + (show)

I’m not sure I understand your point?

adohracapella | @adohracapella | Apr 13 3:02pm

In reply to @pb50 "I’m not sure I understand your point?" + (show)

You said “ And I tried to bite my tongue around the doctors but, I feel like a guinea pig, a lab rat. ”

When a Doctor finishes studying medicine he opens up an office for his Medical Practice ——- it’s a joke Guinea pig is like being the object of an experiment or in other words they are practicing on it ——— you ——- see the humour! ❤️

pb50 | @pb50 | Apr 13 3:50pm

In reply to @adohracapella "You said “ And I tried to bite my tongue around the doctors but, I feel..." + (show)

Actually I didn’t say anything at all except to clarify that your intent was humor 🙂

stwalker717 | @stwalker717 | Apr 14 10:12pm

I think nobody is telling anybody very much because the answers are not pretty. Vaccines have altered humane DNA and set autoimmune system by the tune of over 23 million on overdrive and no one has a way to really shut them off unless they shut down on their own. Everyone who has Auto immune disease has 1 or more major health issues from neuropathy, to cancers, Lupus, MS, Parkinson’s, to name a few. Covid vaccines turned on switches that never should have been turned on causing a lot of early deaths. Only a handful of lead Researchers could prove all this to be true and through fear from other or fear of their share in the cause from society as with many facts today they are being suppressed. Can’t really prove any of this personally, just a hypothesis but you read a lot and look at the facts and this conclusion is totally reasonable for that which they cannot explain.