What's your experience with Orgovyx (relugolix)?

Indeed, I started on that webpage and have talked with multiple folks at Orgovyx. It's unclear of the income data that they looked at. However, the appeals person told me that my SS income alone was over the limit. I did not 'retire' until 70, which is the maximum amount of benefit, however, it still seems ridiculous that would be 'too much income'.

Thanks for your concern. Thankfully, at this point, I'm only required to take O four months, although they said initially 4-6 months.

I hope you are doing well with the drug! I've never taken any drugs for a sustained period before and, thank God, the side effects have been mild so far. I'm working out twice as much daily and changed to a healthier diet.

I'm not sure if this is the same site you used. https://www.orgovyx.com/support-and-resources/
It provided me with a card to pay only $10.00 per month.
Hope this helps you.

Bummer. It’s a good email. When I appealed the upper income limit was $55,000 for my wife and I combined. Our SS income is under that.
One thing is your second month will probably ratchet down from 1362 to 700 ish. It’s about the donut hole.
Another option is just take the Lipton shots. My buddies in Florida took them and seemed to tolerate OK.
Hang in there.

@tjmayo
I ran out of options and just tried emailing:

"Hi Dr. Bourla,
I’m sorry to trouble you, however, I’ve completely run out of options after spending many hours investigating how to reduce my outrageous copay for a drug that is vital for my treatment of prostate cancer.
I will condense all the details into the following key points:
- I chose Orgovyx ADT over injections and noted the case applicable for me:
IF YOU HAVE MEDICARE PART D:

3 out of 4 ORGOVYX patients paid
$100 or less per month on average*
Link provided to orgovyxpricing.co

- On the advice of my care providers’s Orgovyx rep., I filed for the Patient Assistance Program. My application was rejected.
- I filed an appeal sending proof that I retired and am collecting social security.
- Today, Michelle, from your appeals group, advised me that I am again rejected stating the my Social Security income was too high to qualify for PAP.
- Here is the message from Biologics regarding my copay:
Your copay is $1366.22. For payment, we have a card on file to continue with this payment option, text Y. To change your payment option, text N. Msg&DataRatesMayApply, Opt-out:Txt STOP

I think you will agree that the co-pay amount is outrageous for a drug that is medically necessary and there is no generic alternative or other available antagonist. Kindly consider my request for a co-pay that is in line with the website: “ 3 of 4 patients paid $100 or less."

Let us know how it goes ! Fingers crossed

Thanks for replies. I'm also going to make one more run at Orgovyx financial support since I'm in that same boat, they used last year's income and now I'm on SS.

For others who may be interested, my medical provider suggested these avenues, in addition to working with Orgovyx:
Contact Cigna to request a “tier exception”, which (if approved) would provide high tier medication at a lower tier price.
Apply for Medicare's Extra Help program
Apply for Medicaid
Apply for foundation assistance via the Prostate Cancer Health Equity Fund"

If all else fail, I'm planning to email the CEO of Pfizer, albert.bourla@pfizer***, since I've had good luck with other escalations.

I’m on Orgivyx 4 1/2 months. Side effects are almost nil. Seems like better experience than my buddies taking Lupron

Financial - I got accepted by Orgivyx financial support program. Turned me down at first because my tax return 2022 reflected my wife and I before we retired. They just pull the numbers from tax records -
I wrote them back and explained that our current income is only social security - and sent documentation.
They called back and accepted me - they are sending it to me no charge til end of 2023. Then I apply again for 2024.

Hope this helps

I have UnitedHealthcare Medicare Advantage through the State of Georgia. I just started Orgovyx in September. So far coverage has been excellent. First month was $79, second month was $82. I am hopeful that it will remain in that range. I was told that the actual cost was approximately $2,700 per month.

I started Orgovyx Sept 6 and the restless leg at night is also keeping me awake. I would love to find a solution. My case is a bit more complicated because I also have Parkinsons Disease. I thought PD was the reason for the restless leg at night.

Do you take it immediately after or with food? This is important.