Tested Positive: Anyone with Post COVID get infected again?

Posted by Laura Dropps @ldropps, Sep 17 12:36pm

It's been a year and eleven months since the first time I had Covid-19. I tested positive this morning. My husband who is a teacher brought it home from school.

I'm so worried that this will make my Post Covid Syndrome worse and I don't know if I can handle that.

Has anyone with Post Covid Syndrome gotten Covid again? Did it make your symptoms worse?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 group.

@ldropps, oh Laura, I can imagine testing positive today has you really worried that it could worsen your symptoms and cause a setback in your recovery. There are several members like @kellyhart @khonda @lindamarie1949 @dubecates @zthinker69 @bunzman @thomason who have had COVID twice and who are dealing with long COVID, who can share their experiences and whether they faced worsening symptoms or other setbacks.

Have you contacted the Post COVID Clinic to inquire whether you should make an appointment? How are you feeling? Any acute flu-like symptoms at this time?

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@colleenyoung

@ldropps, oh Laura, I can imagine testing positive today has you really worried that it could worsen your symptoms and cause a setback in your recovery. There are several members like @kellyhart @khonda @lindamarie1949 @dubecates @zthinker69 @bunzman @thomason who have had COVID twice and who are dealing with long COVID, who can share their experiences and whether they faced worsening symptoms or other setbacks.

Have you contacted the Post COVID Clinic to inquire whether you should make an appointment? How are you feeling? Any acute flu-like symptoms at this time?

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@colleenyoung, I haven't even thought about contacting anyone. The last time I contacted my doctor at the post covid clinic a nurse told me that I shouldn't contact them anymore. I guess I felt hurt and forgotten. I guess I could message them, though.

I'm getting worse every minute. I've got a runny nose with sinus pressure. Also lots of body aches, but my fatigue is about the same.

I just want to cry.

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@colleenyoung Here's part of what the nurse wrote, "I see you saw Dr. Anstine in August 2021. We are a Consultative Medicine practice so we cannot provide primary care. At this time your episode of care is complete in General Internal Medicine. "

This was in response to a question about c-reactive protein.

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Yes I got Covid again and both times my husband brought it home to me. He had every vaccine and booster available; I’m allergic to the vaccine. I’m not having the high fevers like the first time but the joint pain and loss of taste is just as bad. And fatigue.

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Yes, I got covid in Aug. 2021 and have had severe long haul covid symptoms since then. I had started to recover slightly when I got covid again 11 1/2 months later. Like you, I just wanted to cry or maybe even scream. I couldn't believe it and I was so worried it would set me back on my recovery or maybe even take me far worse than I had gotten the first time.

Just like the first time, I felt like I'd been hit by a train. It came on so suddenly and my fever rocketed up to 102 in no time. I left work and crashed on the couch. I felt awful. Headache, fever, body aches, sinus/cheek pressure, congestion, etc. But praise God! I was only that sick for maybe 1 1/2 days this time! (The first time, my fever lasted 11 days and, for the better part of 2 weeks, I couldn't eat anything. Nothing. Not even my daily vitamins … nor the anti-nausea meds my doctor prescribed … would stay down.) Praise God this 2nd time, I only felt nauseous for part of a day and I only missed 1 meal!

It did set me back in my recovery, though. I became so weak and my vertigo got so bad again that I started moving at a snail's pace again and had to use a cane again for about a week or two.

BUT … I am happy to report those symptoms went away and, after about a month, I was back to at least where I was before my 2nd round with covid.

Hang in there. Drink lots of water but keep your electrolytes in balance, too, by either adding salt to your water or eating Pedialyte popsicles. Eat as much protein as you can. Take your vitamins (D, B12, fish oil pills w/omega-3s, zinc). Rest as much as you can, but try to build up your strength and stamina by doing a little bit each day … and a little more each day. Watch your O2 sats to make sure your breathing is good.

Hang in there and keep the faith!

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@ldropps

@colleenyoung, I haven't even thought about contacting anyone. The last time I contacted my doctor at the post covid clinic a nurse told me that I shouldn't contact them anymore. I guess I felt hurt and forgotten. I guess I could message them, though.

I'm getting worse every minute. I've got a runny nose with sinus pressure. Also lots of body aches, but my fatigue is about the same.

I just want to cry.

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OMG. I can relate to your feelings of hurt. I’ve had similar experiences with doctors/nurses as have two of my friends. Please do not go back there or message them unless it’s to request your records. Find another doctor or clinic.
Also consider reporting them to the appropriate accreditation entity. Could be Patient Experience, in that clinic or hospital, could be the AMA, I’m not sure. I think one of the reasons medical personnel get away with this is patients don’t speak up. I seem to hear too many experiences like yours. You are definitely not alone.
I had Covid in July and it hung on for awhile. I was just getting back almost to normal when I got slammed with Covid- like symptoms again in early Sept. I felt frightened and angry. Thank God it was not Covid, simply a nasty respiratory virus, but I get your frustration about setbacks. I don’t know if this will work for you, but I took Tylenol and worked out through it as much as possible. I don’t seem to be any the worse off for handling it that way.
Yes, rest is important but sometimes taking it too easy will set you back more.
Remember probiotics and hopefully you come back quickly. 🙏

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I have had covid since having long covid. When I told my primary dr., I got not response. When I went to my next appointment at the long-covid clinic at Shands, the dr told me that because I have long-covid, if I ever get a positive test again I need to have my primary dr give me an RX of Plaxlovid.

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@bvw

I have had covid since having long covid. When I told my primary dr., I got not response. When I went to my next appointment at the long-covid clinic at Shands, the dr told me that because I have long-covid, if I ever get a positive test again I need to have my primary dr give me an RX of Plaxlovid.

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So what does the long-Covid clinic actually do?

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@ldropps

@colleenyoung Here's part of what the nurse wrote, "I see you saw Dr. Anstine in August 2021. We are a Consultative Medicine practice so we cannot provide primary care. At this time your episode of care is complete in General Internal Medicine. "

This was in response to a question about c-reactive protein.

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Laura, my apologies for steering you back to the Post-COVID Care Clinic. I had assumed you were still in their care, but see that you were transitioned to your primary care physician after completing the PCCC program.

@artistandtwin, your post is so helpful, informative and hopeful. Thank you for all the details.

Laura, it's not too late to consult with your PCP and see if Paxlovid or another antiviral therapy or monoclonal therapy would be appropriate for you.

How are you feeling today?

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@colleenyoung

Laura, my apologies for steering you back to the Post-COVID Care Clinic. I had assumed you were still in their care, but see that you were transitioned to your primary care physician after completing the PCCC program.

@artistandtwin, your post is so helpful, informative and hopeful. Thank you for all the details.

Laura, it's not too late to consult with your PCP and see if Paxlovid or another antiviral therapy or monoclonal therapy would be appropriate for you.

How are you feeling today?

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@colleenyoung

It's rough. I've slept all day today. Everything hurts, but my breathing is ok.

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@kudzu

So what does the long-Covid clinic actually do?

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Kudzu, you may be interested in this related discussion:
– Preparing for Post-Covid Care at Mayo Clinic: What do I need to know? https://connect.mayoclinic.org/discussion/post-covid-syndrome

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@colleenyoung

Kudzu, you may be interested in this related discussion:
– Preparing for Post-Covid Care at Mayo Clinic: What do I need to know? https://connect.mayoclinic.org/discussion/post-covid-syndrome

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Thank you; I’ll check it out.
I was responding to bvw’s post; it made me wonder.

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