When someone w/dementia experiences a traumatic brain injury (TBI)

Posted by purple6942 @purple6942, Mar 9 11:32pm

I am wondering in a person in their 80s with progressive dementia/alzheimers can ever recover from a pretty significant brain injury. ??

To be honest… I do not know.
What to you mean by recovery? Regaining all abilities?
We hear of unexpected healings.
Never give up hope.

Do the best you can. Expect failures. Expect successes.
Live every day. We have all heard of unexpected recoveries, improvements.

We also have heard .. and seen people, relatives who lived full lives, living with sorrows, handicaps , poor health….and yet they brought great joy to us.

The children I taught had specials needs and filled me with joy, pure love 💕. I learned so much from them. They had many “handicaps” but they exuded love and taught me so much. I have letters from these students and some parents. I treasure them.
Perhaps you would like to write your life story, tell it to someone who can make a booklet to pass on to your loved ones.

Be the best you, where you are now.
I have to remind myself of that often!:
How do you want to be remembered?

God bless you.

REPLY

Hello @purple6942 and welcome to Mayo Connect,

Are you inquiring about TBI with dementia for a family member? I'm just wondering if you could provide a bit more information so that Connect members can respond more appropriately. For example, when was the TBI? Was it before or after the dementia was diagnosed? Has there been any cognitive, physical or occupational therapy?

I look forward to hearing from you. Will you post again?

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Hi, @purple6942 – I wanted to add my welcome to Mayo Clinic Connect. I'm confident members here would love to offer any information they can from their own experiences with traumatic brain injury and dementia (or the case of a loved one), as well as support you in any way possible. Like @hopeful33250, it would be helpful to know a bit more about the background with the brain injury (what happened, when a TBI diagnosis was made) and whom it affects, if you are comfortable sharing?

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@lisalucier

Hi, @purple6942 – I wanted to add my welcome to Mayo Clinic Connect. I'm confident members here would love to offer any information they can from their own experiences with traumatic brain injury and dementia (or the case of a loved one), as well as support you in any way possible. Like @hopeful33250, it would be helpful to know a bit more about the background with the brain injury (what happened, when a TBI diagnosis was made) and whom it affects, if you are comfortable sharing?

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My dad was diagnosed with dementia 5 years ago and has progressively gotten worse. He does not recognize some of his own children. He fell back and hit his head this last Saturday. Some family members feel it is close to his time but I feel my mom is hopeful

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@helenfrances

To be honest… I do not know.
What to you mean by recovery? Regaining all abilities?
We hear of unexpected healings.
Never give up hope.

Do the best you can. Expect failures. Expect successes.
Live every day. We have all heard of unexpected recoveries, improvements.

We also have heard .. and seen people, relatives who lived full lives, living with sorrows, handicaps , poor health….and yet they brought great joy to us.

The children I taught had specials needs and filled me with joy, pure love 💕. I learned so much from them. They had many “handicaps” but they exuded love and taught me so much. I have letters from these students and some parents. I treasure them.
Perhaps you would like to write your life story, tell it to someone who can make a booklet to pass on to your loved ones.

Be the best you, where you are now.
I have to remind myself of that often!:
How do you want to be remembered?

God bless you.

Jump to this post

Thank you!❤
I want to believe in miracles, I've seen them with both my kids. It sucks cuz I am soo far away.

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@purple6942

My dad was diagnosed with dementia 5 years ago and has progressively gotten worse. He does not recognize some of his own children. He fell back and hit his head this last Saturday. Some family members feel it is close to his time but I feel my mom is hopeful

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Your concern for your mom and dad is understandable, @purple6942, especially since you do not live close by. I'm sorry to hear about your dad's fall. When elderly people begin to fall it can be difficult to regain strength.

Was your dad taken to see a doctor after this fall? Were any scans done to determine the possibility of a concussion or other brain damage?

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@hopeful33250

Your concern for your mom and dad is understandable, @purple6942, especially since you do not live close by. I'm sorry to hear about your dad's fall. When elderly people begin to fall it can be difficult to regain strength.

Was your dad taken to see a doctor after this fall? Were any scans done to determine the possibility of a concussion or other brain damage?

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Thank you, yes he was unconscious for about 5 minutes so he was taken by ambulance. I am unsure if it was a brain bleed or bleeding between the skull and brain. He is still in the hospital. He needs 2 people to help him walk and he speaks but it is noncomprehendable.
I have a call into the Dr, I hope he does call. ???

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@purple6942 I hope you are able to talk with his doctor so you can get a clearer picture of your dad's condition. Are there other family members available to assist your mom and dad?
I look forward to your posting again.

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@hopeful33250

@purple6942 I hope you are able to talk with his doctor so you can get a clearer picture of your dad's condition. Are there other family members available to assist your mom and dad?
I look forward to your posting again.

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The Dr did not call 😔
I have 3 sisters and 2 brothers that live closer! They have been rotating staying with mom.
Mom wants us to come home. Not sure how much longer he has.

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@purple6942

The Dr did not call 😔
I have 3 sisters and 2 brothers that live closer! They have been rotating staying with mom.
Mom wants us to come home. Not sure how much longer he has.

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You might try leaving another message for the doctor, @purple6942. In the meantime, have you been able to talk with a nurse on the floor where your dad is? Often nurses will gladly explain to family members test results even though they might not give a diagnosis. You might try that rather than staying in the dark about your dad's condition.

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My dad's brain bleeding now 12 cm. Is it possible for him to do a.d.l.'s for awhile? IWill it continue to get worse? They are only keeping him comfortable, no life saving measures.
My heart is breaking!

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@purple6942

My dad's brain bleeding now 12 cm. Is it possible for him to do a.d.l.'s for awhile? IWill it continue to get worse? They are only keeping him comfortable, no life saving measures.
My heart is breaking!

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Hello @purple6942,

I really can't answer your medical questions about the brain bleed, etc. You say that they are only providing comfort care for him now. Have you asked if he is a candidate for life-saving measures? It could be that because of other health issues that might not be possible. I don't recall you mentioning your dad's age, however, that is probably a consideration along with his history of dementia.

I do understand how difficult it is to let a parent go. My mother died on Thanksgiving Day after being in Hospice care for less than a week. It is traumatic as well as heartbreaking to say good-bye.

How do your other siblings feel about the decisions that are being made by the medical staff? Are they onboard with providing only comfort care now?

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@hopeful33250

Hello @purple6942,

I really can't answer your medical questions about the brain bleed, etc. You say that they are only providing comfort care for him now. Have you asked if he is a candidate for life-saving measures? It could be that because of other health issues that might not be possible. I don't recall you mentioning your dad's age, however, that is probably a consideration along with his history of dementia.

I do understand how difficult it is to let a parent go. My mother died on Thanksgiving Day after being in Hospice care for less than a week. It is traumatic as well as heartbreaking to say good-bye.

How do your other siblings feel about the decisions that are being made by the medical staff? Are they onboard with providing only comfort care now?

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It is my dad's wishes for no life saving measurements.
We support and honor our moms decisions, no matter how hard it is. I spoke with his Dr and he communicated with other neuros and they feel there is really nothing more… also because if his wishes. I forgot to ask about longevity. He is 82. Thank you to all who read and respond❤

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@purple6942

It is my dad's wishes for no life saving measurements.
We support and honor our moms decisions, no matter how hard it is. I spoke with his Dr and he communicated with other neuros and they feel there is really nothing more… also because if his wishes. I forgot to ask about longevity. He is 82. Thank you to all who read and respond❤

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@purple6942

Congratulations on your willingness to follow your dad's wishes and the doctors' recommendations. It is much easier when these discussions have been made in advance. Your dad was very forthright in giving you permission to not engage in extenuating life support procedures.

I know that this will be a difficult journey for you and your family but one that we all face at one time or another. I'll be praying for courage and strength for all of you.

Wishing you well. Will you keep in touch and let us support you through this time?

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