Taking son to mayo this month
I am taking my son with developmental disability to mayo in September. I am getting text message reminders. That's new. He has ophthalmology appointment for strabismus consultation. Then he has medical genetics consultation for whatever else he needs. I am trying to catch my son up with his medical and dental needs. Last time we came down was in 2016 and we came down four times for scans and tests. They put a blood pressure monitor on my son's arm and told me to walk around for six hours. So we walked all around Rochester and visited the art center, public library, and ate a greasy hamburger in a famous place. Then we dropped blood pressure cuff in box and we left. Then we came back for diagnosis of hypertension and my son started meds. That was two years ago. Now we are coming back. I have no idea what will happen with ophthalmology. My son is 27 so this is my life as caregiver. I hope the tests are easy this time so we don't have to come back so many times or walk around for six hours. That's exhausting. Mayo does give my son excellent medical care. But it is stressful and exhausting to be the caregiver. I already came down once to bring my guardianship papers. I can't get patient portal access to my son's file unless I bring guardianship papers. So I can't even look up when his appointments are on portal. But I did get a print out when I brought in my paperwork. Plus I do get the new text message reminders. We've been coming to Mayo for 24 years.