Tired and Burning/itchy skin with Systemic lupus erythematosus (SLE)

Posted by whyus @whyus, May 20, 2017

About 3 weeks ago my dermatologist took a skin biopsy. The pathology report came back as a definitive diagnosis of Systemic lupus erythematosus (LUPUS)

I can’t ses an RA Specialist until September. But I just wondered if any of you have experienced any of these complaints of mine:
(1) Tired. I could sleep all day
(2). Burning/itching under my skin. It feels like ants or something. But scratching does no good at all.
(3) have trouble sleeping.
ThNks for sharing with me.

Liked by chinasmom

@johnbishop

Hello @whyus and @regeanna, I’m also sorry to hear of your diagnosis. I’m hoping others will join in and share information that may be helpful. I don’t have lupus but do have other autoimmune diseases and understand the uncertainty you may feel. Mayo Clinic does have some information that may be helpful – http://mayocl.in/2qJqF78.

There is also another discussion on Tumid Lupus with SLE Symptoms that you may want to join and ask your questions – http://mayocl.in/2qJpF2Q

In the meantime, I’m tagging others who have mentioned or are familiar with lupus @kanaazpereira @paulamiddleton @WendyAnne @oohlalalita @petersen73 @dogmamat @salena54 @dmkmom04 @helloshelly7969 @kdubois @rayhastings @wmoser2613 @buttons @aimeenc, do you have any insight that you can share with @whyus and @regeanna?

Hoping for answers for you soon.

John

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Hello @virginiasenior and welcome to Mayo Connect. I see that you are a relatively new member.

I appreciate your post regarding your sister's diagnosis. One of the great value from participating in Connect is that we all learn from each other. The sharing of your sister's story might certainly help someone else.

I hope your sister is managing this difficult disorder.

Teresa

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@johnbishop

Hello @whyus and @regeanna, I’m also sorry to hear of your diagnosis. I’m hoping others will join in and share information that may be helpful. I don’t have lupus but do have other autoimmune diseases and understand the uncertainty you may feel. Mayo Clinic does have some information that may be helpful – http://mayocl.in/2qJqF78.

There is also another discussion on Tumid Lupus with SLE Symptoms that you may want to join and ask your questions – http://mayocl.in/2qJpF2Q

In the meantime, I’m tagging others who have mentioned or are familiar with lupus @kanaazpereira @paulamiddleton @WendyAnne @oohlalalita @petersen73 @dogmamat @salena54 @dmkmom04 @helloshelly7969 @kdubois @rayhastings @wmoser2613 @buttons @aimeenc, do you have any insight that you can share with @whyus and @regeanna?

Hoping for answers for you soon.

John

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Thank you. My sister is 85 and did pretty good except for the joint pains and fatigue until she had a stroke a few years ago which seems as though the lupus has worsened. Her days and nightsv are switched. She stays up late and doesn't get up or at least going until 2 or 3 in the afternoon. She also has Hashimotos disease and has trouble keeping her thyroid regulated. But we are thankful that it was a slow progression for her.

REPLY
@johnbishop

Hello @whyus and @regeanna, I’m also sorry to hear of your diagnosis. I’m hoping others will join in and share information that may be helpful. I don’t have lupus but do have other autoimmune diseases and understand the uncertainty you may feel. Mayo Clinic does have some information that may be helpful – http://mayocl.in/2qJqF78.

There is also another discussion on Tumid Lupus with SLE Symptoms that you may want to join and ask your questions – http://mayocl.in/2qJpF2Q

In the meantime, I’m tagging others who have mentioned or are familiar with lupus @kanaazpereira @paulamiddleton @WendyAnne @oohlalalita @petersen73 @dogmamat @salena54 @dmkmom04 @helloshelly7969 @kdubois @rayhastings @wmoser2613 @buttons @aimeenc, do you have any insight that you can share with @whyus and @regeanna?

Hoping for answers for you soon.

John

Jump to this post

@virginiasenior

Your sister is so fortunate to have you by her side, both physically and emotionally. I can tell by your words that you are really there for her and care about her.

Yes, any disease that slowly progresses is a good one. I have a slow growing form of cancer, neuroendocrine tumors. I've had three surgeries, the first in 2003 and the last in 2016. It is a blessing, if you will, to not have to face the large crises on a regular basis.

I look forward to hearing from you again, Virginia.

Teresa

REPLY
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