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systemic amyloidosis

Posted by @mikejohnson in Just Want to Talk, Jul 27, 2011

Does anyone out there have systemic amyloidosis?? If so, what treatment was prescribed for you? How's it working for you? To me, this is another "rare" disease, in addition to other health problems. Thanks for sharing....Mike

Tags: Amyloidosis

Pastadog likes this

Posted by @pastadog, Jul 28, 2011

Yes. I was diagnosed last week. I am being referred to UCSF Med Center. I had an positive abdominal fat biopsy. Having an endoscopy and colonoscopy on 7/28. My symptoms are GI issues and peripheral neuropathy. I am not sure what treatment I will undergo. Very scared.

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