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Posts: 1
Joined: Apr 14, 2012

superior vena cava syndrome

Posted by @janetrhodes, Apr 14, 2012

I have just been diagnosed with superior vena cava syndrome due to long term catheters in my chest for plasmaphresis which I have to do weekly due to Myastenia Gravis.Does anyone know what I can do to make my quality of life any better.



Posts: 1
Joined: Sep 26, 2014
Posted by @kcrews, Sep 25, 2014

I have found stay very cool what some would say is cold helps breathing. My scvs is due to a fungus on the outside of my lungs and heart, 13 years ago.

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