Does anyone have a movement disorder such as stress-induced myclonus with noise sensitivity? Or a cognitive decline that impacts their ability to stay employed? I have been dealing with a movement disorder since 2/2001. I pretty much ignored it because it mainly happen at night (no it is not restless leg syndrome). In March 2007 while conducting a demonstration meeting at work, the movements became very very bad. My head kept wrenching to the left and my hands would not stay on the keyboard. I tried to ignore it and continue the meeting to no avail. My family doctor referred me to a local neurologist who was only interested in ALS patients but he did prescribe topomax.. So my family doctor referred me to a different neurologist. The second neurologist diagnosed me with essential myoclonus and placed me on klonopin and topamax. I lost weight and it helped with my migraines, but the doctor determined that it was not essential myoclonus and referred me to the Baylor Movement Disorder Clinic where the final diagnosis was made. I have been placed on various drugs with some success. But over the last six years, I have had cognitive and attention decline. I found articles by a Yale PhD that has found an association between long term chronic stress and damage to the per-frontial cortex of the brain. I am a 57 year old female engineer who can not do analytical thinking or anything that requires the executive function of my brain. This cognitive decline has made it impossible for me to be contributor to my work team. It has also impacted my ability to accomplish things around the house. My stress has come from being a single mother raising a special-needs son (he is 30 now and not as stressful to deal with) and a job which has me as a single point of failure on multi-billion dollar program (major stress). I trained a few of people to do my job and left for another program with the same company; I was called back frequently to help. For the last five years I have worked from home (North Alabama) for a company in the SF Bay area. Working from home has helped with the jerks but not the cognitive problems. This past year I have been driving a few hours several times a month to Vanderbilt to see a multitude of specialist and my general health has improved but not my cognitive abilities. My company and my boss have been patient with me, but it is getting to the point that my current employment is in jeopardy. I need help in a desperate way! I do not have a spouse or family that can help advocate for me or support me financially.. I must be able to perform my job inorder to care for my son and myself. Currently, I work a reduced schedule via accommodations requested by my doctor in hopes of recovering. I have considered seeking help from the Mayo Clinic but ,my greatly reduced income makes it difficult to do so. Has anyone else experience a similar problem? Is there a doctor anyone would recommend? Please help me!
Liked by Teresa, Volunteer Mentor