stop progression, suppress motor and non-motor symptoms

Posted by royprop @royprop, May 24, 2018

My name is Roy and I introduce Dr. Marco Colangeli and Dr. Antonio Costantini

I was Diagnosed Parkinson’s 2012
My regimen:
The positives: no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. etc. motor and non-motor symptoms…

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamin HCL is oral substitute to IV B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever…".
.
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –
Doctor Costantini – “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Dr. Marco Colangeli and Dr. Antonio Costantini
Google – costantini healthunlocked
My name is Marco Colangeli, I am Dr. Costantini's research assistant, co-author, and when needed, also English to Italian language translator. Thank you very much for opportunity to share the findings of our research with more patients.

From our point of view there are a few aspects that should be highlighted and possibly further mainstreamed:

1) It is important from our point of view that also your own practitioners and MD are involved with this novel therapy. Therefore we do call upon your contribution to this research by informing your Doctors about this therapy and the beneficial effects you are experiencing. We have experienced an unspeakable amount of skepticism and lack of trust towards this simple yet incredibly effective therapy. If on the one hand we can see why this may happen, on the other hand we do consider that regardless the personal skepticism or any less-than-professional form of competition among doctors, it is fundamental for the well-being of the patients that your doctors are asked to contribute actively. This is particularly relevant in light of the fact that we have limited time and resources to follow a continuously increasing number of patients worldwide.

2) It is paramount that out clinical findings are taken to the next level by partnering with research institutes and pharmaceutical companies to fully understand and fully exploit the potential of this therapy. Our resources are too limited (since 2011 we have worked on this 100% without any form of external funding sometimes even purchasing from third parties the thiamine to provide our patients with) and we cannot mainstream the results of this research alone. The exact mechanisms of action of Thiamine on PD patients (as well as on a number of other conditions we have studied and documented at case-study level) must be researched and fully comprehended. Moreover, in the context of a proper double blind label type of research, this therapy can be A) improved even further and B) recognized by the scientific community. The most direct consequence of this is that millions of patients worldwide will experience the same if not better results that those who have tried the therapy because already in direct contact with us have.

Thank you for your attention

Best regards

– Dr. Marco Colangeli and Dr. Antonio Costantini

@ridgebacksam

I am trying to decipher your acronyms, and I am at a loss for what C/L and ER stand for. Also, 2g… does that stand for 2000 mg for the oral route? I am going to introduce this information, that I just found out myself today, about Thiamine to my husband who has PD. He was diagnosed about five years ago, yet his progression in the past three years has gone from tremors to falling forward. He literally has to catch a wall, etc. to stop falling. He refuses to use a walker. Thanks for clarifying things for me.

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Carbidopa Levodopa, extended release. Two grams = four 500mg capsules.
join my facebook group:
"parkinson's thiamine hcl"
https://www.facebook.com/groups/232260083958797
Parkinson's Relief, Questions and Answers

Guide:
1. Read page, About, open links.,
2. On Files page, open B1 FAQ document.
3. On Files page, download First Appointment document, answer and submit.
4. read Announcements

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Thanks for the clarification. Now the problem will be convincing my husband to take way above the recommended daily allowance of 1.2 mg for an adult male.

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@royprop

Therapeutic level is four grams a day. Stage 5 will be difficult to affect.

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Thank you tons for your reply! I know it's too late @ stage 5, yet, I will try to build up to 4gms of oral thiamine per day, thanks again!

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@royprop

Carbidopa Levodopa, extended release. Two grams = four 500mg capsules.
join my facebook group:
"parkinson's thiamine hcl"
https://www.facebook.com/groups/232260083958797
Parkinson's Relief, Questions and Answers

Guide:
1. Read page, About, open links.,
2. On Files page, open B1 FAQ document.
3. On Files page, download First Appointment document, answer and submit.
4. read Announcements

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Hi Roy. So my husband is wanting to try it but I am looking at the oral capsules and they say thiamine mononitrate. I can’t find any oral route that says thiamine hydrochloride. Not sure what to do. I didn’t think he would agree to take a high dose supplement. The mononitrate can cause kidney stones and it’s not the pure form of thiamine hydrochloride, according to what I’ve read so far. Your insight is greatly appreciated. Thank you

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@ridgebacksam

Hi Roy. So my husband is wanting to try it but I am looking at the oral capsules and they say thiamine mononitrate. I can’t find any oral route that says thiamine hydrochloride. Not sure what to do. I didn’t think he would agree to take a high dose supplement. The mononitrate can cause kidney stones and it’s not the pure form of thiamine hydrochloride, according to what I’ve read so far. Your insight is greatly appreciated. Thank you

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There are several sources for thiamine hcl or hci. I find Vitacost dot com lists thiamine hci in a search on the web site.

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@royprop

There are several sources for thiamine hcl or hci. I find Vitacost dot com lists thiamine hci in a search on the web site.

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Thanks.

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I am truly amazed. Yesterday I read Roy's post about thiamine, looked and found a bottle of 250mg tablets that my late wife had. I took 1 with each of my carb/levo 25-100 x3 . This morning I got up with no tremor now 2 hours later I am getting a small twitch in my left hand. I am encouraged.

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@robjohn

I am truly amazed. Yesterday I read Roy's post about thiamine, looked and found a bottle of 250mg tablets that my late wife had. I took 1 with each of my carb/levo 25-100 x3 . This morning I got up with no tremor now 2 hours later I am getting a small twitch in my left hand. I am encouraged.

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Thiamine hcl has not shown to have a tremor reducing affect.

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Roy, I don't know why the tremor is gone but I am grateful if it is only for a little while. That aggravating tremor is really about the only symptom I have. When I asked the Neurologist do I have Parkinson's or not he replied you have a Parkinson tremor but not full-blown Parkinsons. I do have an adrenal tumor and have an appointment to get it checked for pheochromocytoma. I have a lot of symptoms that match that.

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So what does it help?

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@lsdempsey

So what does it help?

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See the first post. Mayo Admin does not want me to repost.

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@royprop

See the first post. Mayo Admin does not want me to repost.

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Thank you!

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