stop progression, suppress motor and non-motor symptoms

Posted by royprop @royprop, May 24, 2018

My name is Roy and I introduce Dr. Marco Colangeli and Dr. Antonio Costantini

I was Diagnosed Parkinson’s 2012
My regimen:
The positives: no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. etc. motor and non-motor symptoms…

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamin HCL is oral substitute to IV B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever…".
.
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –
Doctor Costantini – “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Dr. Marco Colangeli and Dr. Antonio Costantini
Google – costantini healthunlocked
My name is Marco Colangeli, I am Dr. Costantini's research assistant, co-author, and when needed, also English to Italian language translator. Thank you very much for opportunity to share the findings of our research with more patients.

From our point of view there are a few aspects that should be highlighted and possibly further mainstreamed:

1) It is important from our point of view that also your own practitioners and MD are involved with this novel therapy. Therefore we do call upon your contribution to this research by informing your Doctors about this therapy and the beneficial effects you are experiencing. We have experienced an unspeakable amount of skepticism and lack of trust towards this simple yet incredibly effective therapy. If on the one hand we can see why this may happen, on the other hand we do consider that regardless the personal skepticism or any less-than-professional form of competition among doctors, it is fundamental for the well-being of the patients that your doctors are asked to contribute actively. This is particularly relevant in light of the fact that we have limited time and resources to follow a continuously increasing number of patients worldwide.

2) It is paramount that out clinical findings are taken to the next level by partnering with research institutes and pharmaceutical companies to fully understand and fully exploit the potential of this therapy. Our resources are too limited (since 2011 we have worked on this 100% without any form of external funding sometimes even purchasing from third parties the thiamine to provide our patients with) and we cannot mainstream the results of this research alone. The exact mechanisms of action of Thiamine on PD patients (as well as on a number of other conditions we have studied and documented at case-study level) must be researched and fully comprehended. Moreover, in the context of a proper double blind label type of research, this therapy can be A) improved even further and B) recognized by the scientific community. The most direct consequence of this is that millions of patients worldwide will experience the same if not better results that those who have tried the therapy because already in direct contact with us have.

Thank you for your attention

Best regards

– Dr. Marco Colangeli and Dr. Antonio Costantini

@royprop Hello Roy:

Thank you for sharing your experience with us at Mayo Connect. I am glad that you found help. I found some information from the NIH regarding this,
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3762356/

Also here is an article from the Journal of Neurological Sciences, https://www.jns-journal.com/article/S0022-510X(12)00068-8/fulltext

It is most important that Parkinson's patients discuss this or any alternative treatment with their doctor. I wish you continued good health.

Teresa

Pull Test
Roys Pull Test 08/14/2018
First result is typical when one has Parkinson's. Second pull after foot is positioned for better recovery and balance. I was first diagnosed with Parkinson's in the year 2012. I credit my good condition to Doc. Costantini's high dose thiamine hcl advice.
(continue)
B1 Thiamine HCL therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to IM injection B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamin hcl stops the progression forever…".
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol.

facebook group:
"parkinson's thiamine hcl"
https://www.facebook.com/groups/232260083958797
Parkinson's Relief, Questions and Answers

How can my husband be evaluated or obtain information on the thiamine therapy to help his Parkinson’s disease? Can this information be shared with his neurologist in Peoria, IL?
Does Medicare insurance cover this therapy?
Thank you, Karen Zogg

Liked by royprop

@kzogg

How can my husband be evaluated or obtain information on the thiamine therapy to help his Parkinson’s disease? Can this information be shared with his neurologist in Peoria, IL?
Does Medicare insurance cover this therapy?
Thank you, Karen Zogg

Jump to this post

Doctor Costantini is not selling: medicine, book, herbs, vitamins, workshops. His research into the application of thiamine HCL (vit B1) over the years has resulted in relief of symptoms, stopped progression of Parkinson's. There is no need to use Medicare as you will need only purchase from your sources, Vitamin B1 in the form of thiamine HCL. Thank you for asking. My name is Roy Propsner. I am not an agent of Doctor Costantini. I am a Parkinson's patient that has great admiration and gratitude owed to the Doctor and now wish to reach out to others.

Diagnosed 2012
My regimen:
The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms…
Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.
New schedule, now I follow this regimen:
3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.
2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever…".
Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –
Doctor Costantini – “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.
Google search: Doctor Costantini Parkinson

Hi Roy! Thanks so much for the info! Can you tell me where I can buy the supplements and exactly what I am looking for. I am not quite sure of the exact names of these supplements as per your email. Just want to make sure I would get the right thing. Also, it seems like your neurologist is on board with you taking them. Are you, or have you been on any medication like levidopa/carbidopa? Appreciate your input. Thx!

@susan62

Hi Roy! Thanks so much for the info! Can you tell me where I can buy the supplements and exactly what I am looking for. I am not quite sure of the exact names of these supplements as per your email. Just want to make sure I would get the right thing. Also, it seems like your neurologist is on board with you taking them. Are you, or have you been on any medication like levidopa/carbidopa? Appreciate your input. Thx!

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Hello @susan62
It is nice to see your post. How are you feeling now?

@susan62

Hi Roy! Thanks so much for the info! Can you tell me where I can buy the supplements and exactly what I am looking for. I am not quite sure of the exact names of these supplements as per your email. Just want to make sure I would get the right thing. Also, it seems like your neurologist is on board with you taking them. Are you, or have you been on any medication like levidopa/carbidopa? Appreciate your input. Thx!

Jump to this post

See my post above.
New schedule, now I follow this regimen:
3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.
2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

Thx. So you are only taking the vitamins and no medication?

@susan62

Hi Roy! Thanks so much for the info! Can you tell me where I can buy the supplements and exactly what I am looking for. I am not quite sure of the exact names of these supplements as per your email. Just want to make sure I would get the right thing. Also, it seems like your neurologist is on board with you taking them. Are you, or have you been on any medication like levidopa/carbidopa? Appreciate your input. Thx!

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Hi @royprop, You'll notice that I removed your personal email from your message above. We recommend that people not post personal contact information on the public forum to reduce the risk of getting unwanted spam.

Roy, thank you for sharing your hope, success and updates with your regimen.

@susan62, good questions to Roy. When reading about medications, supplements and dosages, it is important, as you suggest, to always check with your neurologist (and pharmacist too) before taking a supplement or changing medications.

Connect's disclaimer provides wise advice:
All information shared by members on the Mayo Clinic Connect, such as messages, images, advice, URLs, and any other material, is for informational purposes only and is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health. Never disregard professional medical advice or delay in seeking it because of something you have read on the community.

@royprop

Pull Test
Roys Pull Test 08/14/2018
First result is typical when one has Parkinson's. Second pull after foot is positioned for better recovery and balance. I was first diagnosed with Parkinson's in the year 2012. I credit my good condition to Doc. Costantini's high dose thiamine hcl advice.
(continue)
B1 Thiamine HCL therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to IM injection B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamin hcl stops the progression forever…".
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol.

Jump to this post

How long were you on the regimen before you noticed improvement?

@mcjames

How long were you on the regimen before you noticed improvement?

Jump to this post

One week.

@royprop

Doctor Costantini is not selling: medicine, book, herbs, vitamins, workshops. His research into the application of thiamine HCL (vit B1) over the years has resulted in relief of symptoms, stopped progression of Parkinson's. There is no need to use Medicare as you will need only purchase from your sources, Vitamin B1 in the form of thiamine HCL. Thank you for asking. My name is Roy Propsner. I am not an agent of Doctor Costantini. I am a Parkinson's patient that has great admiration and gratitude owed to the Doctor and now wish to reach out to others.

Diagnosed 2012
My regimen:
The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms…
Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.
New schedule, now I follow this regimen:
3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.
2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:
(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)
Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever…".
Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.
I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –
Doctor Costantini – “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.
Google search: Doctor Costantini Parkinson

Jump to this post

Hello Roy! I have been following your posts on health unlocked on this thiamine therapy protocol you follow..it seems too good to be true but it is a natural supplement and in that fact alone lies it's immense potential to cure, reassures me and my family in helping my father who's now reached stage 5 PD.
He's been diagnosed 15+ years ago, now completely bedridden,has dysphagia, insomnia,dementia, constipation and all the related works..it was when we were losing all hope I came across your posts…
I know you are not a doctor but the fact that you honestly and wholeheartedly share your regimen, proving Dr. Constantini's studies and the program's success for all of us to benefit from, makes you several times more reliable than a physician.With all due respect, may I please seek your advice on how much thiamine might be beneficial for my father in his present condition? I tried parenteral thiamine (IM) for him in doses of 200mg/ml and 100mg/ml. Unfortunately, to both doses he developed itchiness and we had to stop injection.currently giving him up to 800mg per day of thiamine HCl supplements pills. I fear high doses may give him itch…

What do you think will be a safe dose to start?

Thank you and take care!

Regards,
Deepa

@dvasude

Hello Roy! I have been following your posts on health unlocked on this thiamine therapy protocol you follow..it seems too good to be true but it is a natural supplement and in that fact alone lies it's immense potential to cure, reassures me and my family in helping my father who's now reached stage 5 PD.
He's been diagnosed 15+ years ago, now completely bedridden,has dysphagia, insomnia,dementia, constipation and all the related works..it was when we were losing all hope I came across your posts…
I know you are not a doctor but the fact that you honestly and wholeheartedly share your regimen, proving Dr. Constantini's studies and the program's success for all of us to benefit from, makes you several times more reliable than a physician.With all due respect, may I please seek your advice on how much thiamine might be beneficial for my father in his present condition? I tried parenteral thiamine (IM) for him in doses of 200mg/ml and 100mg/ml. Unfortunately, to both doses he developed itchiness and we had to stop injection.currently giving him up to 800mg per day of thiamine HCl supplements pills. I fear high doses may give him itch…

What do you think will be a safe dose to start?

Thank you and take care!

Regards,
Deepa

Jump to this post

Therapeutic level is four grams a day. Stage 5 will be difficult to affect.

@royprop

See my post above.
New schedule, now I follow this regimen:
3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.
2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

Jump to this post

I am trying to decipher your acronyms, and I am at a loss for what C/L and ER stand for. Also, 2g… does that stand for 2000 mg for the oral route? I am going to introduce this information, that I just found out myself today, about Thiamine to my husband who has PD. He was diagnosed about five years ago, yet his progression in the past three years has gone from tremors to falling forward. He literally has to catch a wall, etc. to stop falling. He refuses to use a walker. Thanks for clarifying things for me.

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