Still no diagnosis
I am continuing on my journey. I went to a new physician today, an internal medicine doctor. I only had one 10 mg Pred left until another doctor appt in 1 week. I felt I needed to at least get some more Pred since what I have been reading has me a little spooked if I stopped cold turkey after 50 days. While I felt he listened to me, I don’t think he heard me. He somewhat agrees with me that it could be PMR, but he thinks I should have had no pain after taking a dose of 40 mg for 5 days. I have taken 2 separate 20 day regimens starting with 40mg, 30 mg, 20 mg, 10 mg. It appears to me my pain and stiffness symptoms decreased with the 40 and 30 mg doses. With the 20 and 10 mg doses, the pain and stiffness increased. I argued that perhaps if I took 40 mg for a longer duration maybe the pain would have decreased. Long story short, he gave me a 30 day script for 20 mg a day. He also is trying to fast track me to see a rheumatologist so will see what happens.
While I was happy to see he was at least aware of PMR and GCA, he said it usually lasts a year or so and if it’s PMR the Pred should take the pain away. I tried to explain to him how the pain never goes away completely, talked to him how emotional I have become and asked about doing blood tests. From what I have been reading I think I should have follow up blood work, but he did not order any. He ordered Alendorate (generic for Fosomax) to help with bone density.
So my question to all of you, when you take the Pred, does all of your pain go away? I guess, I am at his mercy to try the 20 mg. He also thought it was maybe rotator cuff on left side since both sides are affected, but my left is worse. I don’t know how that explains my butt, hip pain though. Any thoughts?