Still having gut problems after severe Cdiff & FMT

Posted by sandyabbey @sandyabbey, Jan 27, 2020

I had Cdiff caused by antibiotics ( clindamycin ) for a sinus infection. I relapsed 4 times after 4 tries on meds. I was down to 85 pounds. I then had an FMT last February 28th. I’m in remission now but lots of foods still hurt me. Sometimes for it seems like no reason , I have severe cramps. They go away fairly quickly, but at the time I can barely stand it. I get constipated too. I then have to take miralax. It seems to work somewhat, but just small amounts several times a day. Also when I’m constipated my bladder feels like I have a UTI. I went ti my urologist & the culture was somewhat normal, just a few leukocytes. I just took AZO & that helped. As soon as I had a good BM it stopped. I’m now getting that bladder feeling again & I’m not Having good BMs I going e everyday but not enough. I sent to my GI also because I can’t take antibiotics unless life or death. It will mostly cause Cdiff again. I can’t take that again. I almost died. Any input about this appreciated.

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I had an FMT yesterday. I have had some diarrhea this afternoon. Not lots but it makes me anxious. I called the Dr & the nurse practitioner told me to take a lomoti. I know you aren’t supposed to with Cdiff, but since thus FMT they told me to. Anyone had this ?

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@sandyabbey

I had an FMT yesterday. I have had some diarrhea this afternoon. Not lots but it makes me anxious. I called the Dr & the nurse practitioner told me to take a lomoti. I know you aren’t supposed to with Cdiff, but since thus FMT they told me to. Anyone had this ?

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@sandyabbey I read on one of the websites that it can take up to 4 days to feel better after an fmt. I am having an fmt on March 25 via colonoscopy. Did you have that also?

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@ngorman25

@sandyabbey I read on one of the websites that it can take up to 4 days to feel better after an fmt. I am having an fmt on March 25 via colonoscopy. Did you have that also?

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I had mine via endoscopy into the small intestine. He thought since my colon was so traumatized that I might be able to hold it in longer if it went through the whole digestive track. They do them both ways.

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I have or I hope had cidiff for 4 months. I was treated everytime. Failed even Dificid. 2 weeks ago I had an FMT. The next day I had some diarrhea that my Dr said was normal. The next day a small amount. I went 4 days with nothing at all. I called my GI & they said take fibercon. I did & still nothing. I called back & they added miralax. Finally after 2 days I had a small amount about the size o a little finger. I will feel like I’m going to & just gas & maybe a tiny amount. It’s been 2 weeks today since my FMT. It’s been 10 days since a complete BM. I’m calling my Dr this morning, but would like to have any suggestions or could I be in trouble. I’m very upset about it. I don’t want a prep like clean out because it could wash out my new FMT stool.

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@sandyabbey

I have or I hope had cidiff for 4 months. I was treated everytime. Failed even Dificid. 2 weeks ago I had an FMT. The next day I had some diarrhea that my Dr said was normal. The next day a small amount. I went 4 days with nothing at all. I called my GI & they said take fibercon. I did & still nothing. I called back & they added miralax. Finally after 2 days I had a small amount about the size o a little finger. I will feel like I’m going to & just gas & maybe a tiny amount. It’s been 2 weeks today since my FMT. It’s been 10 days since a complete BM. I’m calling my Dr this morning, but would like to have any suggestions or could I be in trouble. I’m very upset about it. I don’t want a prep like clean out because it could wash out my new FMT stool.

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@sandyabbey
I would call your doctor right away. You could have a blockage. Last June my son was in the hospital, part of his testing was a Colonoscopy. He had been on complete bed rest could only get up to sit on the commode beside his bed with the help of a nurse. Was on a liquid diet. They sent him home two days after his colonoscopy knowing he hadn’t moved his bowels. He went back in the hospital a day and a half latter. He was in the hospital for another week. His bowels were blocked. It took the surgeon coming in and going off on the hospital doctors before they finally gave him an eneima. He had just been diagnosed with Primary Sclerosing Cholengitis and Crohn’s disease. If you have constant pain this needs to be taken care of immediately.

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@sandyabbey

I have or I hope had cidiff for 4 months. I was treated everytime. Failed even Dificid. 2 weeks ago I had an FMT. The next day I had some diarrhea that my Dr said was normal. The next day a small amount. I went 4 days with nothing at all. I called my GI & they said take fibercon. I did & still nothing. I called back & they added miralax. Finally after 2 days I had a small amount about the size o a little finger. I will feel like I’m going to & just gas & maybe a tiny amount. It’s been 2 weeks today since my FMT. It’s been 10 days since a complete BM. I’m calling my Dr this morning, but would like to have any suggestions or could I be in trouble. I’m very upset about it. I don’t want a prep like clean out because it could wash out my new FMT stool.

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@sandyabbey I wish more people would give us updates about FMT. And I'm so sorry to hear that Dificid didn't work for you. After taking Flagyl, Vancomycin (twice) and Dificid last October, I had decided doing the FMT would be my next step. So far, so good, after taking the Dificid. I hadn't heard about constipation after doing the FMT. Have you been able to put some weight back on? You're so right when you say Cdiff is a monster. Every time I've had a cold this winter, I was afraid it would turn in to another sinus infection. And I'll never take Clindamycin again…. or any other antibiotic… if I can help it. I usually get UTI's, at least one a year, and I've been so careful trying to avoid getting one. I've even changed my soap to a ph balanced one.

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@pines

@sandyabbey I wish more people would give us updates about FMT. And I'm so sorry to hear that Dificid didn't work for you. After taking Flagyl, Vancomycin (twice) and Dificid last October, I had decided doing the FMT would be my next step. So far, so good, after taking the Dificid. I hadn't heard about constipation after doing the FMT. Have you been able to put some weight back on? You're so right when you say Cdiff is a monster. Every time I've had a cold this winter, I was afraid it would turn in to another sinus infection. And I'll never take Clindamycin again…. or any other antibiotic… if I can help it. I usually get UTI's, at least one a year, and I've been so careful trying to avoid getting one. I've even changed my soap to a ph balanced one.

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@pines @sandyabbey I had FMT on Feb 28. After a small accident the day of, I didn’t have stool for 3-4 days which I expected. Exactly a week later, I had diarrhea 10x one day and 2x the next. I wanted to scream “no this isn’t happening!” Well, no more diarrhea. I have been constipated. I am able to go some but I’m bloated and crampy. I’ll call my doc Monday to update. I feel that the cdiff is gone (things are definitely different) but I don’t feel well in a different way. I have Crohn’s as well as IBS and before C diff my usual had been constipation. So, I’m not sure if I’m normal again or not. FMT is still so new… I’m not sure the docs have all the answers. I know trials are being done to see if FMT will help Crohn’s and IBS. Time will tell. I hope you all get answers!

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@nettecook

@pines @sandyabbey I had FMT on Feb 28. After a small accident the day of, I didn’t have stool for 3-4 days which I expected. Exactly a week later, I had diarrhea 10x one day and 2x the next. I wanted to scream “no this isn’t happening!” Well, no more diarrhea. I have been constipated. I am able to go some but I’m bloated and crampy. I’ll call my doc Monday to update. I feel that the cdiff is gone (things are definitely different) but I don’t feel well in a different way. I have Crohn’s as well as IBS and before C diff my usual had been constipation. So, I’m not sure if I’m normal again or not. FMT is still so new… I’m not sure the docs have all the answers. I know trials are being done to see if FMT will help Crohn’s and IBS. Time will tell. I hope you all get answers!

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I also still have lots of gas.

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Hi, after having c-diff. for a year I can no longer digest sucrose in my small intestines. Request a sucrose breath test from your G.I. Dr. It took me 3 years to find out the cause of extreme bloating and cramps after the c. diff. nothing was back to "normal". The test is non-invasive.

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I had a bad reaction to cirpro and flagyl post roux en y surgery 4 months ago that I am still dealing with. Seems to have gotten into my CNS. So I feel for you when you try to take something to help your situation, but then end up doing something else bad for you. It is so hard to deal with feeling like this day in and day out. Certainly takes the optimism out of life.

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@sue6408

Hi, after having c-diff. for a year I can no longer digest sucrose in my small intestines. Request a sucrose breath test from your G.I. Dr. It took me 3 years to find out the cause of extreme bloating and cramps after the c. diff. nothing was back to "normal". The test is non-invasive.

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Thank you, I’ll certainly do that. Cdiff is a monster.

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@bborth

I had a bad reaction to cirpro and flagyl post roux en y surgery 4 months ago that I am still dealing with. Seems to have gotten into my CNS. So I feel for you when you try to take something to help your situation, but then end up doing something else bad for you. It is so hard to deal with feeling like this day in and day out. Certainly takes the optimism out of life.

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It really does. Most people don’t understand unless they’ve had it. My life is forever changed. I have heart issues ( afib ) & my meds for that slow me down too.

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