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nutmeg
@nutmeg

Posts: 2
Joined: Mar 17, 2017

Stiff Persons Syndrome

Posted by @nutmeg, Mar 17, 2017

Just wanted to know if anyone out there has Stiff Persons Syndrome. I was diagnosed with it last summer.

REPLY

Welcome to Connect, @nutmeg,

I’d like to introduce you to @sandra319, @pattygail, who have recently discussed Stiff Person Syndrome (SPS); @twirlgirl101, @lora, @southernbell, have also posted about it in the past, and I hope they will return with some insights.

If you read through the past messages of this discussion in the Brain & Nervous System group, http://mayocl.in/2n0Aspm, you’ll see that @johnbishop has provided a number of useful resources about SPS.

Did you know that Mayo Clinic has a Movement Disorders Laboratory in Rochester, Minnesota, that conducts studies and research on SPS? If you wish, you can get more information, and clinical updates by clicking on this link: http://mayocl.in/2nCYhl8

@nutmeg, you mentioned Intravenous Immunoglobulin (IVIG) treatment; could you tell us a bit more about it? Did you have any side effects?

@kanaazpereira

Welcome to Connect, @nutmeg,

I’d like to introduce you to @sandra319, @pattygail, who have recently discussed Stiff Person Syndrome (SPS); @twirlgirl101, @lora, @southernbell, have also posted about it in the past, and I hope they will return with some insights.

If you read through the past messages of this discussion in the Brain & Nervous System group, http://mayocl.in/2n0Aspm, you’ll see that @johnbishop has provided a number of useful resources about SPS.

Did you know that Mayo Clinic has a Movement Disorders Laboratory in Rochester, Minnesota, that conducts studies and research on SPS? If you wish, you can get more information, and clinical updates by clicking on this link: http://mayocl.in/2nCYhl8

@nutmeg, you mentioned Intravenous Immunoglobulin (IVIG) treatment; could you tell us a bit more about it? Did you have any side effects?

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I had ivig in the pass with no side effects I have also had rituxin the first one lasted almost 2years the 2nd one I had just this last Nov. and my sysmtoms are all ready coming back

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