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Posts: 1
Joined: Oct 23, 2011

stiff man syndrome

Posted by @nunez, Oct 23, 2011

I was just told I have stiff man syndrome the pain is getting worst an Iam not sure if iam getting the right treatment not sure where to get from here.


Native Floridian

Posts: 175
Joined: Oct 15, 2011
Posted by @nativefloridian, Oct 23, 2011

Hey, I just came across a website you may find helpful:

Grama Teri

Posts: 9
Joined: Dec 30, 2011
Posted by @gramateri, Jan 9, 2012

Hi there! I have Myotonia Congenita, and so does one of my daughters. It’s also called “Tin Soldier” disease, because the muscles stiffen up and don’t relax right away, causing the person to stumble or even fall. I don’t take anything for it, as it isn’t a progressive disease like Myotonia Dystrophy. What kind of pain do you have? My muscles hurt a lot, and more so in cold weather. When I’m sitting down, I need to pause for several seconds when I stand up, or I’ll fall over, because my legs are stiff. I can remember having this as a child. I would get ready to run in to jumprope, and fall down, or get ready to run in a relay race, and fall down. Weird disease.

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