Statins and peripheral neuropathy

Posted by jacquespierre @jacquespierre, Apr 26, 2019

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN… burning, numb, painful lower legs and feet… no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

@iceblue

Many thanks for the additional info @jeffrapp ! I have only seen my new doctor once, but the intake to his clinic (conducted by a resident?) took a full hour. I couldn't believe how thorough they were! Upon getting the results of my blood tests, they called TWICE to request that I come back into the clinic to discuss blood test results (upward creeping cholesterol was the only thing out of range). I will chat with the doctor about any concerns he may have about statins impacting SFN, and am sure that he and I will build a good, solid relationship over time.

But – I think it's also time to step out of denial and conclude it's time to start making a serious effort to shed the pounds I put on when I quit smoking last year. And if I was completely honest – I was 20 pounds overweight even before that, so I'm packing around an extra 40 pounds and live the life of a slug (partially because of the pain in my feet), and – I eat more junk food than I should. It's time to make some changes to improve my own health – even if statins (which I've been nervous about for years) are part of that recipe…

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I saw my doctor today. He provided info I was not quite prepared for! He believes I have a genetic cholesterol issue. After discussing my family issues related to heart attacks and strokes, and my cholesterol numbers and patterns over time – I agreed to try Crestor.

In terms of 'Do statins cause PN?' I'm not sure about that as I had SFN before starting the statins – but I will definitely be watching to see if my SFN gets worse.

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I developed PN almost 20 yrs ago – I also have had lifelong high cholesterol My doctors have badgered me to take statins forever (although I have always felt they weren't the great silver bullet and probably would prove to have long term downsides, as they have) and I have tried several, and each and every time they made my neuropathy worse. I am sure it is different for everyone and my sister tolerates statins fine and has been on them forever. One surprise though – I had a heart cath last year to check my arteries, which everyone assumed would be blocked due to my off-the-chart cholesterol for decades – guess what? They were wide open! and my calcium score was -0-! I attribute it to oatmeal!! Good luck!

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BOTH! It is a well known risk (not potential) for PN. Just do a quick Google search. I believed this pill pusher for 8 years and the last two every time I mentioned numbness, tingling, cold feeling in my hands, mostly my feet, she either changed the subject, said "it must be your nerves" or ignored the comment completely. Turns out I never had high cholesterol nor diabetes. Brenda Peart is the head Cardiologist for the Carondelet Medical Group in Tucson, Az. and after contacting 27 lawyers, in and out of state, no one would go up against her. She ruined my life and who knows how many others and will never be brought to justice. My confidence in the medical profession is forever changed. I know one bad apple doesn't make the whole tree bad but in a few years I may wind up in a wheel chair and I have to wake up to that prospect every morning. Believe what you want about inferred treatments, exercise, Gabapentin, etc. THERE IS NO CURE FOR PERIPHERAL NEUROPATHY!

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After several unsuccessful Statin prescriptions, my PCP suggested Red Yeast Rice 600mg capsules which I purchased at Sam's Club.

My LDL cholesterol was reduced from 110 to 90 after 30 days and I continue taking it until I achieve a 70 LDL reading.
Having 2 stents in the LCA is reason for the lower goal.

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@kazz30

After several unsuccessful Statin prescriptions, my PCP suggested Red Yeast Rice 600mg capsules which I purchased at Sam's Club.

My LDL cholesterol was reduced from 110 to 90 after 30 days and I continue taking it until I achieve a 70 LDL reading.
Having 2 stents in the LCA is reason for the lower goal.

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Hi, @kazz30 – when you say your statin prescriptions were unsuccessful, do you mean at lowering your LDL? Have you experienced any side effects with the red yeast rice capsules?

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@lisalucier

Hi, @kazz30 – when you say your statin prescriptions were unsuccessful, do you mean at lowering your LDL? Have you experienced any side effects with the red yeast rice capsules?

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I’m allergic to all statins and I have high cholesterol and high triglycerides. I’ve gotten them all down to normal with my diet. I basically follow the all American diet-balanced. And the easiest way that I do that is a do a quarter of a plate with fruit, quarter plate of meat and a half of a plate of greens. My salad i use the Italian vinegar instead of salad dressing. Basically just eliminate all sugar and all cars from your diet I will see what your numbers do! No sodas or juices.- water water

Liked by lioness, rwinney

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I QUIT STATINS, heard they cause the pain and took them for decades, just watch my diet without them. I do not know what my CHOLESTERAL IS NOW.
NO STATINS NO GLUCOPHAGE JUST MY INSULIN AND THE GABAPENTIN AND THE METANX…so far some of the pain is gone. Will see an MRI on FRIDAY to see if it is in my spine. M.

Liked by rwinney

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@margaretob I hope you,LL have good results I've tried so many that Iwent off b c of muscle pain but the one I'm on now doesn't bother me

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@lioness

@margaretob I hope you,LL have good results I've tried so many that Iwent off b c of muscle pain but the one I'm on now doesn't bother me

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what statin are you on now i am trying to get off statins but my doctor is not coming up with any alternatives

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@ruthofanne

what statin are you on now i am trying to get off statins but my doctor is not coming up with any alternatives

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The last day I took ANY Statin drug was October 15, 2018. After extensive on-line research I came up with Bragg's Organic Apple Cider Vinegar and still take one tablespoon in 8 ounces of cold water every morning BEFORE breakfast. Look it up. Everyone is different but it seems to work for me because in every checkup in the last year and a half my LDL, etc. has been within normal perimeters. There are too many doctors today that are just interested in writing prescriptions and moving on to their next patent during their 15 minute insurance allotted office visit!

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@dutchman09

The last day I took ANY Statin drug was October 15, 2018. After extensive on-line research I came up with Bragg's Organic Apple Cider Vinegar and still take one tablespoon in 8 ounces of cold water every morning BEFORE breakfast. Look it up. Everyone is different but it seems to work for me because in every checkup in the last year and a half my LDL, etc. has been within normal perimeters. There are too many doctors today that are just interested in writing prescriptions and moving on to their next patent during their 15 minute insurance allotted office visit!

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I agree. It's great you have found success with a natural product. Thanks for spreading the word. -Rachel

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@margaretob

I QUIT STATINS, heard they cause the pain and took them for decades, just watch my diet without them. I do not know what my CHOLESTERAL IS NOW.
NO STATINS NO GLUCOPHAGE JUST MY INSULIN AND THE GABAPENTIN AND THE METANX…so far some of the pain is gone. Will see an MRI on FRIDAY to see if it is in my spine. M.

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Good luck to you.

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@dutchman09

The last day I took ANY Statin drug was October 15, 2018. After extensive on-line research I came up with Bragg's Organic Apple Cider Vinegar and still take one tablespoon in 8 ounces of cold water every morning BEFORE breakfast. Look it up. Everyone is different but it seems to work for me because in every checkup in the last year and a half my LDL, etc. has been within normal perimeters. There are too many doctors today that are just interested in writing prescriptions and moving on to their next patent during their 15 minute insurance allotted office visit!

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did you notice any difference in your neuropathy after stopping the statins

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@ruthofanne

what statin are you on now i am trying to get off statins but my doctor is not coming up with any alternatives

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@ruthofanne Hi I'm now on Creator ,rovustatin the generic this is the only one that brings my cholesterol down and doesn't bother me of course watch your diet

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@lisalucier

Hi, @kazz30 – when you say your statin prescriptions were unsuccessful, do you mean at lowering your LDL? Have you experienced any side effects with the red yeast rice capsules?

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Hi Lisa, Various Statin drugs were prescribed after a non-heart attack ( 2007 ) but an 85 % blockage required 2 stents in the LCA.

Liked by Lisa Lucier

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