Squamous Cell Cancer of head and neck

Posted by carolynswebb @carolynswebb, Feb 7, 2017

Does anyone know of a treatment for squamous cell cancer stage IV? My son is 47 and was given weeks to live but he is still active and now outlived the weeks by months. His treatments have stopped as the oncologists said they have given him radiation and 3 different forms of chemotherapy including immunotherapy.

Interested in more discussions like this? Go to the Head & Neck Cancer group.

Welcome Carolyn,
Please meet @mrsjhagen18 who has squamous cell carcinoma of the tonsil and @lzzie who has squamous cell carcinoma of base of tongue. Also meet @sylviapf @lisa_sj99 @loli @alpaca and others who are talking about head and neck cancer here:

– Head and neck cancer http://mayocl.in/2eskY6G

Carolyn, have you and your son’s care team looked into possible clinical trials? https://clinicaltrials.gov/

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My surgeon was Dr.Jermy Richmond that is now in Boston practice. an excellent surgeon. I had squanous cell carcinoma of the base of the
tongue. In October I was suppose to have more tissue removed but can’t get appointment until the end of March. Hummm.
Dr. Jeremy Richmon phone number and location in Boston is listed on internet. Don’t know if this helps. I am sorry
that you are having to go through this….. We should be able on this site to put our heads together and come up with something.

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Hello! First of all, excuse me for the grammar. I just wrote in Spanish and translate. Hope someone here can give me some advise. I will be very thankful 🥹.
My dad had a swollen node on the right side of his neck, which was operated on April 2022. When they did the biopsy, it came out to be positive, so they did a second surgery recently on June 9,2022 to clean the entire right area of ​​the neck that had the affected nodes(ganglion) don’t know if I am saying it correctly. . The biopsy this time turned out to be negative. Even so, the doctor recommend 33 radiation sections, one daily, leaving the weekend off. This is normal? Even though the biopsy was negative? How long should you start with the radiation after the surgery?The radiations must be without interruptions? That is, 33 continuously, just resting weekend? He lives in another country, but I want to bring him with me to the United States to do the radiation treatment here instead of our country.But I don't know right now how long he can go without starting his radiation treatment. And he can be here by the end of August after he gets his visa. I do not know what decision I should take .. someone who has experience in this. How long he can be fine before starting with radiotherapy?

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@hei

Hello! First of all, excuse me for the grammar. I just wrote in Spanish and translate. Hope someone here can give me some advise. I will be very thankful 🥹.
My dad had a swollen node on the right side of his neck, which was operated on April 2022. When they did the biopsy, it came out to be positive, so they did a second surgery recently on June 9,2022 to clean the entire right area of ​​the neck that had the affected nodes(ganglion) don’t know if I am saying it correctly. . The biopsy this time turned out to be negative. Even so, the doctor recommend 33 radiation sections, one daily, leaving the weekend off. This is normal? Even though the biopsy was negative? How long should you start with the radiation after the surgery?The radiations must be without interruptions? That is, 33 continuously, just resting weekend? He lives in another country, but I want to bring him with me to the United States to do the radiation treatment here instead of our country.But I don't know right now how long he can go without starting his radiation treatment. And he can be here by the end of August after he gets his visa. I do not know what decision I should take .. someone who has experience in this. How long he can be fine before starting with radiotherapy?

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I was diagnosed with tonsil cancer 7 years ago and the treatment was surgery then wait 5 weeks till the 33 radiations and 3 chemo treatments. Mine unfortunately spread to my lungs and I have been fighting that ever since with various treatments. I wish you the best!

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@hei

Hello! First of all, excuse me for the grammar. I just wrote in Spanish and translate. Hope someone here can give me some advise. I will be very thankful 🥹.
My dad had a swollen node on the right side of his neck, which was operated on April 2022. When they did the biopsy, it came out to be positive, so they did a second surgery recently on June 9,2022 to clean the entire right area of ​​the neck that had the affected nodes(ganglion) don’t know if I am saying it correctly. . The biopsy this time turned out to be negative. Even so, the doctor recommend 33 radiation sections, one daily, leaving the weekend off. This is normal? Even though the biopsy was negative? How long should you start with the radiation after the surgery?The radiations must be without interruptions? That is, 33 continuously, just resting weekend? He lives in another country, but I want to bring him with me to the United States to do the radiation treatment here instead of our country.But I don't know right now how long he can go without starting his radiation treatment. And he can be here by the end of August after he gets his visa. I do not know what decision I should take .. someone who has experience in this. How long he can be fine before starting with radiotherapy?

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Hola @hei. Feel free to respond in Spanish. It will be automatically translated for English speakers and vice versa.

It is common to have radiation 5 days a week and weekends off. It sounds like radiation has been recommended to make sure to kill any invisible cancer cells that may not have been removed by surgery. The length of time between surgery and radiation may differ from patient to patient.

If you would like to request an appointment for your father, you can do it online using this form in Spanish https://onlineservices.mayoclinic.org/NewAppointments/?v=int

Here is additional information in Spanish about Mayo Clinic's International Services: https://www.mayoclinic.org/es-es/departments-centers/international

May I ask what country he lives in? How is he doing?

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@colleenyoung

Hola @hei. Feel free to respond in Spanish. It will be automatically translated for English speakers and vice versa.

It is common to have radiation 5 days a week and weekends off. It sounds like radiation has been recommended to make sure to kill any invisible cancer cells that may not have been removed by surgery. The length of time between surgery and radiation may differ from patient to patient.

If you would like to request an appointment for your father, you can do it online using this form in Spanish https://onlineservices.mayoclinic.org/NewAppointments/?v=int

Here is additional information in Spanish about Mayo Clinic's International Services: https://www.mayoclinic.org/es-es/departments-centers/international

May I ask what country he lives in? How is he doing?

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Hi! Thank you so much for answering and also to @sammy15
My dad is still waiting for the radiotherapy treatment. it was suppose to start on July 4th, but the doctor recommended starting an antibiotic treatment first because he had a little redness in the inside part of the wound in one area. He said that is because is not healed 100 percent yet. He needs to go for a follow-up this coming Friday (July 8) also he started getting a medication through veins (it is a monoclonal antibody) that will be combined with the radiotherapy treatment. This monoclonal antibody will be subministered to him every Friday for 6 Fridays. He currently lives in Cuba. And we decided he needs to start the treatment there because it will take too much time for him to start treatment here in the US. and delaying this is not a good idea. He is doing fine right now, his surgery wound looks healthy, no pain. Will update as soon as he start radiotherapy. side effects, etc.
Thank you for everything. 🙂

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