Mayo Clinic Connect
Is anyone else here a SCAD (spontaneous coronary artery dissection) survivor? I had mine, and the heart attack it caused, in March of ’09, when I was 40 years old. Always happy to talk with other people who’ve had them.
Liked by Lee Aase, KAKLeon
Hi Laura! Just saw your discussion message and want to let you know, Mayo Clinic has important research coming out in the next few weeks about SCAD! Stay tuned and stay in touch… Dana Sparks
Liked by Kari Ulrich, Alumna Mentor
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I had a carotid dissection at age 48. Great news to learn research info being released soon!
Hi Laura- I am going to attach a link to our vascular support group. Jennifer my co-founder had SCAD and her story is on our website. She is an amazing person- and you can get in touch with her through our web site: http://www.mwva.org- hope this helps. – Kari
Hi Laura – please visit http://www.spontaneouscoronaryarterydissection.com/
It’s a blog started by a SCAD survivor with many helpful resources and also a discussion forum.
My SCAD was of the LAD, a postpartum one after the birth of my second child in 2003. I was 38, in great health with no risk factors for HD. I had emergency double bypass. I believe there is a hormonal link, as that’s when I’m regularly bothered by cardio symptoms.
Mayo Clinic has gotten approval for a couple of new studies related to SCAD. This post give some information on them. http://mayocl.in/SCADstudy
Liked by Kari Ulrich, Alumna Mentor, Kimberly, KAKLeon
Sending a HUGE thank you to Dr. Hayes and the Mayo team for believing that SCAD did have research potential. As a pilot study participant, I will be forever grateful.
Liked by jennifer99
I second this! Thank you to Dr. Hayes and Mayo for taking us on and searching to learn more about SCAD!
what procedure is used for a carotid dissection
Chiming in to “third” this — lots of appreciation to everyone at Mayo who’s made these studies happen.
laura I had a complete dissection of my aorta in March 2010 at the age of 39 it has really been a struggle for me because no one seems to understand what Marfan Syndrome is and the doctors in NC have no clue as what to do with me. I desire to visit the Mayo Clinic because of all the awesome research and things that maybe available to assist with the prolong of my life span.
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