So today, I've found out I have Henoch Schonlein Purpura, I happy

Posted by @angelher, May 23, 2012

So today, I’ve found out I have Henoch Schonlein Purpura, I happy my doctor found out what it is, yet, still upset that it’ll take time to heal. but it’s okay… Things will get better in time (:

ralph97
@ralph97
Posts: 3
Joined: Apr 09, 2017

Posted by @ralph97, Sun, Apr 9 11:50am

How are you doing? I think i might have HSP, and my doctor did not diagnose it for 2 years, I am upset. Any medications you are taking for this?

kanaazpereira, Connect Moderator
@kanaazpereira
Posts: 515
Joined: Oct 09, 2016

Posted by @kanaazpereira, Sun, Apr 9 2:08pm

Welcome to Connect @ralph97,

I’m truly sorry to hear about your situation, and glad that you’ve joined this community to get some insight.
Here is some information from Mayo Clinic about Henoch-Schonlein purpura, also known as IgA vasculitis: http://mayocl.in/2ofBCh9

I’m tagging @emtlisap @deleeuw25 @angelher who have spoken about this condition in the past on Connect; hopefully they will join the conversation. While not IgA, you may interested in connecting with members who have a variety of vasculitis conditions (Microscopic polyangiitis, Wegeners, Rheumatoid, etc) on this thread: http://mayocl.in/2oPcwr0

@mlemieux @mkat5955 @gonefishinmt, do you have any information for @ralph97?

Liked by Teresa, Volunteer Mentor

ralph97
@ralph97
Posts: 3
Joined: Apr 09, 2017

Posted by @ralph97, Mon, May 1 9:00pm

Thanks Kanaaz, i have taken a look at your link, and it matches those of my symptoms, except for kidneys (touchwood).

ralph97
@ralph97
Posts: 3
Joined: Apr 09, 2017

Posted by @ralph97, Mon, May 1 9:04pm

Does anyone know where to get medical socks for swelling and rashes on lower legs ?

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So today, I've found out I have Henoch Schonlein Purpura, I happy