Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

Interested in more discussions like this? Go to the Digestive Health group.

I had a LYNX devise on my esophagus. It's a titanium magnetic ring that stays closed and keeps acid from entering my esophagus. I had severe acid reflux and SIBO can cause that since it forces acid and gas up the esophagus and causes erosion. I had this done at Mayo in 2014. Also Hernia at the same time. I have to watch everything I eat! Right now I'm doing carnivore diet seemed to feel better after 3 weeks so tried a salad last night and still in pain!!

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I strongly recommend joining this SIBO support group on facebook: "SIBO SOS community" (I'm not allowed to post URLS here, sorry). The group files have TONS of resources (testing, treatment, diet, lectures, etc.). Whenever you post a question, there'll be answers. There are also info on alternative herbal antimicrobials for treating SIBO for those who cannot afford Xifaxan.
In the group files there's a list of naturopathic doctors specialized in SIBO. Honestly they know more than the main stream MDs about SIBO. SIBO is a secondary condition, which has a underlying cause (like food poisoning, dysbiosis, low stomach acid…). You have to identify and treat the root cause to prevent SIBO from coming back.
Also this website, developed by SIBO expert Allison Siebecker, is super helpful as well:siboinfo.com

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@zcheng32

I strongly recommend joining this SIBO support group on facebook: "SIBO SOS community" (I'm not allowed to post URLS here, sorry). The group files have TONS of resources (testing, treatment, diet, lectures, etc.). Whenever you post a question, there'll be answers. There are also info on alternative herbal antimicrobials for treating SIBO for those who cannot afford Xifaxan.
In the group files there's a list of naturopathic doctors specialized in SIBO. Honestly they know more than the main stream MDs about SIBO. SIBO is a secondary condition, which has a underlying cause (like food poisoning, dysbiosis, low stomach acid…). You have to identify and treat the root cause to prevent SIBO from coming back.
Also this website, developed by SIBO expert Allison Siebecker, is super helpful as well:siboinfo.com

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Thank you!

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@robinl

Hi
I just had my appointment with the gastro specialist. He explained to me that the nerves give off mixed messages to the abdomen. He told me to google monash university and search the low FODMAP diet. He said this is what he’s has recommended for patients with issues like ours.
Hope this works for you. Changing what you eat will certainly help.
Robin.

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I've been on lowFod 7 weeks and now 2 weeks and taking herbals reccomended by siebecker. Very little difference and I've been on xifaxan too 🙁 nothing is helping me. Water hurts.

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@maryannegau

I’ve been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can’t eat sugar or carbs or my stomach hurts quite alot. Any suggestions?

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Check out foodmarble.com the devise allowed me to track how I digest food real time many times a day… everyones food transit time is different and modifyhealth.com when I get to lazy to cook healthy!

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@maryannegau

I’ve been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can’t eat sugar or carbs or my stomach hurts quite alot. Any suggestions?

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Did you find anything that helped? Struggling a lot with this. Took amoxcicilin-clav, xifaxan and now on herbals berberine/oregano/Allicin. Waiting for Atrantil and GI advantage for repair. Its hard to tolerate water at this point. I suspected this last April and GI doctor couldn't test because of Covid. He just said IBS and gave me antidepressant and bentyl which actually slows motility and I think I have that. I lost 30lbs in 2 months from pain after I'd eat. I had a rib surgery that left me constipated for 10 days and all the pain meds made it worse. I was finally tested in January. Anywho!! I have very little relief and I dont know who to turn to.
Thank you!
Aimee

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@maryannegau

I’ve been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can’t eat sugar or carbs or my stomach hurts quite alot. Any suggestions?

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Sorry your your in so much distress Most GI Doctor do an incredible job but ours is a disease of exclusion and there isn't a whole lot of time in an appointment to get things done. So it is on us to participate. For me "food is medicine" check out this brilliant blog https://www.ibsfree.net/news Also check out the work at Hopkins being done by Dr Jay Pasricha

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@maryannegau

I’ve been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can’t eat sugar or carbs or my stomach hurts quite alot. Any suggestions?

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I don’t know what Nessin? is. I’ve been seeing gastros, for years. The only diagnosis I get is: IBS C, diverticulitis, gastritis and the usual small polyps diverticular nothing that stands out up until October 2020..

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@maryannegau

I’ve been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can’t eat sugar or carbs or my stomach hurts quite alot. Any suggestions?

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Now, the pain I have is UNBEARABLE at times. My stomach can bloat so that I must “prop” it just to walk…& apparently my bowels are dead. No BM w/out linzess, amitiza or Trulance, and then it’s just explosive air and water

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@maryannegau

I’ve been battle SIBO for months now and have tried Rifaxin, Flagyl and antiviral meds. Also have tried Zithromax and am taking Atrantil (an herbal remedy). I can’t eat sugar or carbs or my stomach hurts quite alot. Any suggestions?

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Erythromycin, a low dose, will stimulate bowel activity. I still have to use laxatives. Sorry, I sympathize!

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@lpolaka

Sorry your your in so much distress Most GI Doctor do an incredible job but ours is a disease of exclusion and there isn't a whole lot of time in an appointment to get things done. So it is on us to participate. For me "food is medicine" check out this brilliant blog https://www.ibsfree.net/news Also check out the work at Hopkins being done by Dr Jay Pasricha

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Hello @lpolaka

I appreciate you sharing the information from the http://www.ibsfree.net/news information. It speaks of the Fodmap eating plan and how it can help IBS symptoms. As a follower of this eating plan, I've found that it does help.

As you mentioned Dr. Jay Pasricha, I found this YouTube video which was very helpful in understanding the brain/gut connection. Here is the link to that video.

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@brayimee

Did you find anything that helped? Struggling a lot with this. Took amoxcicilin-clav, xifaxan and now on herbals berberine/oregano/Allicin. Waiting for Atrantil and GI advantage for repair. Its hard to tolerate water at this point. I suspected this last April and GI doctor couldn't test because of Covid. He just said IBS and gave me antidepressant and bentyl which actually slows motility and I think I have that. I lost 30lbs in 2 months from pain after I'd eat. I had a rib surgery that left me constipated for 10 days and all the pain meds made it worse. I was finally tested in January. Anywho!! I have very little relief and I dont know who to turn to.
Thank you!
Aimee

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I can totally relate. I got started getting sick about three years ago. I got worse over time. I kept telling doctors I think it is related to my gastric bypass done four plus years ago. They said it is not probable. I saw all types of specialists. In February I tried a pill cam because I swore I had crohns. Covid hit and it was so difficult to get anything done. In may i was going to have laparoscopic surgery but it got converted to open surgery (no visitors). Got out felt ok for a bit. And the gi symptoms started up again. I kid you not that when it was bad I would burp 1000+ in an hour ( there’s an app for that). They threw every antibiotic under the sun at me. Some worked short term. But got worse. Went in for a balloon dilation two times after the first surgery. The second baloon dilation in August doc had to stop that procedure and admit me for another emergency surgery. Surgeon said it was the second most complicated surgery of his career. While healing from that, symptoms got worse. Finally received the results from the sibo breath test done in March that resulted in both hydrogen and methane gas. It got missed originally because gi doc thought it was just a blockage. Since January 2021 I started rifaximin and I’ve stayed on it since. Obtained about 60% improvement. Recently added another antibiotic with the rifaximin. I’m now at about 70 to 80%. But I’m scared too. I still have what I call episodes where I’ll get crazy tremors inside and out, brain fog … it is even difficult to form sentences when that happens. A couple positives is that my stools are starting to be a little more regular and I’ve stopped fainting and falling. I still wake up about every three to four hours at night. I work from my bed on my laptop most days. I have to get iron infusions every month. I don’t drive hardly at all. I just want this to be over. The one thing I have learned is that you HAVE to be your own advocate and push when necessary. I started off thinking it was in my own head and minimizing my symptoms until they took over my life and I did that initially because the first couple doctors weren’t taking me seriously because of clear test results. I fired them and found a good gi doc and the best surgeon and am thankful to them for giving me a sliver of my life back. Sorry for the book. I just want to encourage you and anyone else that reads this to not give up.

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