Sibo

Posted by gtassithomas @gtassithomas, Wed, Jan 16 5:05pm

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

You need to contact Mayo directly to request an appointment. No guarantee that they will see you. They will gather your information and get back to you about whether you will get the appointment.

REPLY
@jackiem95

You need to contact Mayo directly to request an appointment. No guarantee that they will see you. They will gather your information and get back to you about whether you will get the appointment.

Jump to this post

Well that is discouraging

REPLY
@gtassithomas

Well that is discouraging

Jump to this post

I called the gastro appointment desk and they were booked out for about 4 months and could not schedule because they were in the middle of switching computer systems. That was in Sept. It is complete(in Phx) by now. The girl told me I could call everyday to see if there were any cancellations. I kept doing that & I finally was lucky enough to get on the phone with someone who was somehow able to send a note in for a work around appt for me. She told me there was no guarantee, but she would try. I was making my daily call two days later and the girl I was on the phone with said they had an appointment for me in 2 weeks. I cried. Then, right after I got off the phone, the original girl who was working to get me in called me to give me the good news. I did not have to send any medical records until after I had the appointment

REPLY
@thull

I called the gastro appointment desk and they were booked out for about 4 months and could not schedule because they were in the middle of switching computer systems. That was in Sept. It is complete(in Phx) by now. The girl told me I could call everyday to see if there were any cancellations. I kept doing that & I finally was lucky enough to get on the phone with someone who was somehow able to send a note in for a work around appt for me. She told me there was no guarantee, but she would try. I was making my daily call two days later and the girl I was on the phone with said they had an appointment for me in 2 weeks. I cried. Then, right after I got off the phone, the original girl who was working to get me in called me to give me the good news. I did not have to send any medical records until after I had the appointment

Jump to this post

I'll give it a shot I'm just not sure wether to try gastromotility or autonomic neuropathy dept

Liked by thull

REPLY
@gtassithomas

I'll give it a shot I'm just not sure wether to try gastromotility or autonomic neuropathy dept

Jump to this post

But thanks that's more encouraging

Liked by thull

REPLY
@thull

I called the gastro appointment desk and they were booked out for about 4 months and could not schedule because they were in the middle of switching computer systems. That was in Sept. It is complete(in Phx) by now. The girl told me I could call everyday to see if there were any cancellations. I kept doing that & I finally was lucky enough to get on the phone with someone who was somehow able to send a note in for a work around appt for me. She told me there was no guarantee, but she would try. I was making my daily call two days later and the girl I was on the phone with said they had an appointment for me in 2 weeks. I cried. Then, right after I got off the phone, the original girl who was working to get me in called me to give me the good news. I did not have to send any medical records until after I had the appointment

Jump to this post

Is this in Phoenix? The process at the main clinic in Rochester MN where I applied (and was turned down) is much more structured. I would apply in Phoenix too but my understanding is that the clinic there (as well as the one in Florida) do not accept out of state Medicare patients.

REPLY
@jackiem95

Is this in Phoenix? The process at the main clinic in Rochester MN where I applied (and was turned down) is much more structured. I would apply in Phoenix too but my understanding is that the clinic there (as well as the one in Florida) do not accept out of state Medicare patients.

Jump to this post

Yes, in Phoenix. I don't know anything about out of state insurance stuff. I am glad that my insurance was in network. I feel very lucky to have gotten in, especially with my current situation. Although that came as a result of going to the ER and having to be admitted. Surgeons came to me, and even though the main one I saw is a general surgeon, he is working under a colo rectal Surgeon who also saw me and was in the operating room. My last 3 surgeries this past year were at a different hospital and just a general surgeon, not a specialist. While I really liked this surgeon, I just felt better going forward to being treated by somebody who specializes in the bowel.

REPLY

Glad it is working out for you in Phoenix. Great idea to see a good specialist.

REPLY
@jackiem95

Is this in Phoenix? The process at the main clinic in Rochester MN where I applied (and was turned down) is much more structured. I would apply in Phoenix too but my understanding is that the clinic there (as well as the one in Florida) do not accept out of state Medicare patients.

Jump to this post

Phoenix Mayo does accept straight Medicare, just not the advantage plans. Good luck!

REPLY
@sita

Phoenix Mayo does accept straight Medicare, just not the advantage plans. Good luck!

Jump to this post

This is from their website: “For out of state residents, Mayo Clinic has chosen to be a nonparticipating facility in AZ and FL and does not accept assignment for Medicare Part B for out if state residents. This means that Mayo does not accept Medicare approved amounts as Payment in full.”

Their policy is obviously different for AZ and FL residents.

REPLY

Right, in September of 2018 I was seen and had to pay 15% over what Medicare paid. It was less than $200 for two specialists appointments.

REPLY

That is certainly reasonable! I assume that you are not an AZ resident? I guess the real consideration would be how much $$ would be involved if there ended up to be numerous costly tests and procedures. Thanks!

REPLY
@jackiem95

That is certainly reasonable! I assume that you are not an AZ resident? I guess the real consideration would be how much $$ would be involved if there ended up to be numerous costly tests and procedures. Thanks!

Jump to this post

Yes, I am not an Arizona resident. I had many blood tests run and really don’t remember any extra costs, so if there were some, they must have been minimal. I was concerned about that as well.

REPLY

I called the Phoenix clinic today. Basically, they told me that because of the high demand for care in certain specialties (e.g gastroenterology) they are now not accepting anyone at all on a government health care program—that is anyone on Medicare (even with supplementary insurance) or Medicaid. So I guess that ends my quest for care at Mayo.

REPLY

Wow, I am sorry to hear that!

REPLY
Please login or register to post a reply.