Seeking words of wisdom

Posted by msmel @msmel, Dec 3, 2017

Long story short my husband had a CT scan which revealed 17 lung nodules, most under 8mm but one 13x6mm in the upper right lobe. All were non calcified, spiculated, spherical and soft tissue density. His primary said they were all normal and there was nothing to worry about. I pushed for pulmonary specialist as his family has a large history of cancer and he has a history of smoking ( quit 5 years ago but switched to e-cigs). Well I was told Pulmononlogist wouldn’t be able to see him until March but they called Friday asking to see him next week. I’m not a worrier. I’m a fighter. Same primary doctor dismissed my symptoms three years ago and the following day I had a stroke. So I don’t have a lot of faith in their opinion. I’m glad the Pulmononlogist is seeing him so quickly. Is there anything that stands out in that would be of concern? I’ve been researching as much as I can just for support for him but preparing for the worst and hoping for the best is a motto we go by regularly. Any tips , thoughts or otherwise would be appreciated.

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Hi, Msmel. Welcome to Connect.
To some degree you must be relieved that you pushed for further investigation of the lung nodules given your husband's family and personal history and risk factors. Here's a brief response from a Mayo Clinic expert Q&A about lung nodules
https://www.mayoclinic.org/diseases-conditions/lung-cancer/expert-answers/lung-nodules/faq-20058445

You may also wish to read the discussion in the Lung Health group where you'll meet @kwilbur @pattymac @kaystrand @rayhastings and others
- Lung nodules & scared! https://connect.mayoclinic.org/discussion/lung-nodules-scared/

Msmel, What led your husband to having a lung CT scan? What questions have you prepared to ask the pulmonologist?

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Welcome to Connect.
When I was first diagnosed with lung cancer, I asked the Pulmonologist questions for 3 hours...the next day, I asked the Thorasic Surgeon questions for 3 hours. At first it was intense. Then I felt trust, and greatly appreciated their time to explain and discuss the seriousness of my diagnosis. Find a team that
you have faith in. The research with lung health and lung cancer information available is plentiful today, 10 years after my diagnosis. Are you working with the most experienced teams? How many people does the medical team you are working with properly diagnose and properly treat in a year, or to date? Do you feel you need a second opinion?
linda

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@colleenyoung

Hi, Msmel. Welcome to Connect.
To some degree you must be relieved that you pushed for further investigation of the lung nodules given your husband's family and personal history and risk factors. Here's a brief response from a Mayo Clinic expert Q&A about lung nodules
https://www.mayoclinic.org/diseases-conditions/lung-cancer/expert-answers/lung-nodules/faq-20058445

You may also wish to read the discussion in the Lung Health group where you'll meet @kwilbur @pattymac @kaystrand @rayhastings and others
- Lung nodules & scared! https://connect.mayoclinic.org/discussion/lung-nodules-scared/

Msmel, What led your husband to having a lung CT scan? What questions have you prepared to ask the pulmonologist?

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He’s been having pain in his right side that has been pretty bad with no relief . He originally went to have his chest X-ray and that when they found the original nodule as 8mm which we now assume was the 13mm which is what prompted the chest CT.

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@llwortman

Welcome to Connect.
When I was first diagnosed with lung cancer, I asked the Pulmonologist questions for 3 hours...the next day, I asked the Thorasic Surgeon questions for 3 hours. At first it was intense. Then I felt trust, and greatly appreciated their time to explain and discuss the seriousness of my diagnosis. Find a team that
you have faith in. The research with lung health and lung cancer information available is plentiful today, 10 years after my diagnosis. Are you working with the most experienced teams? How many people does the medical team you are working with properly diagnose and properly treat in a year, or to date? Do you feel you need a second opinion?
linda

Jump to this post

Thank you for the reply. This is all new to us so I didn’t have questions to ask. I am glad you brought up those points.

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